tag:blogger.com,1999:blog-1000326625965122367.post1898315309573215105..comments2024-03-08T17:14:17.994-05:00Comments on Pray For Lilly: Focus on our FamilyLisahttp://www.blogger.com/profile/06306217651417023803noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-1000326625965122367.post-63289568354657459532010-08-30T13:00:26.191-04:002010-08-30T13:00:26.191-04:00Hi, I just read Lily's story. I was contacted...Hi, I just read Lily's story. I was contacted by a friend who thought I could be of help. My daughter, Allie, was born with severe Mitral Stenosis. She was on Lasix to help her breathe until she was forced to have surgery at 7 weeks/7 lbs. due to not being able to breathe and eat at the same time. I'm sure the symptoms are similar to your Lily's. She did undergo 2 open heart surgeries in a 2 week span. Though she was tiny and had to receive an adult mitral valve replacement...we are so grateful of God's Grace and Mercy on her and our family as she did survive the surgery and lived a happy 10 months with us. My hope and prayers are with you that God will place Lily with the Dr. that can do her surgery. I spoke with Allie's Dr. and he was just as stubborn as the Dr.s you mentioned when I questioned him about the surgery for her. So glad you're one step closer to finding a surgeon! God Bless You ALL!whaleyworldhttps://www.blogger.com/profile/04267358216762803275noreply@blogger.comtag:blogger.com,1999:blog-1000326625965122367.post-72165838594779503022010-08-29T19:53:03.953-04:002010-08-29T19:53:03.953-04:00That sounds like an awesome idea and lilly is a be...That sounds like an awesome idea and lilly is a beautiful girl to showcase:)Chadhttps://www.blogger.com/profile/09329600443965675208noreply@blogger.comtag:blogger.com,1999:blog-1000326625965122367.post-77367261551007682612010-08-29T09:41:51.504-04:002010-08-29T09:41:51.504-04:00I know that reading about others with similar situ...I know that reading about others with similar situations has helped me and will help others. And I love the fact that your beautiful photos will be used. :)Nikkihttps://www.blogger.com/profile/15253440747389521864noreply@blogger.com