Happy Independence Day/4th of July and Happy Birthday, Lilly!  She would have turned 14 years old today if she were still alive.  I'm so...

Today, March  18 , is  Trisomy   18   Awareness   Day .  What is  Trisomy   18 ? It means there are 3 of the 18th chromosomes in the body, i...

SOFT (Support Organization For Trisomy) ( soft.org ) is a group that  has been educating and helping families with children diagnosed with T...

A few days after Christmas, my two youngest children, LillyBear, and I took a trip to Chincoteague island in Virginia.  We'd never been ...

LillyBear and I have an exiting announcement to make!  We now have a published book on Amazon.com:  LillyBear Goes to Chincoteague .   Becau...

I just wanted to share an exciting medical journal article, which finally acknowledges that infants born with Trisomy 18 or 13 are more like...

Hi everyone!  I know it's been SO LONG since I've posted.  I actually still think of all sorts of things I'd like to write about...