Pages
(Move to ...)
Home
Lilly's Story
Trisomy 18 & 13 Resources
Grief Resources
Memory Ideas
The Lilly Memorial Project
▼
Monday, March 18, 2024
It's Trisomy 18 Awareness Day
›
Today, March 18 , is Trisomy 18 Awareness Day . What is Trisomy 18 ? It means there are 3 of the 18th chromosomes in the body, i...
Friday, March 8, 2024
March is Trisomy Awareness month
›
SOFT (Support Organization For Trisomy) ( soft.org ) is a group that has been educating and helping families with children diagnosed with T...
Tuesday, January 24, 2023
LillyBear Returns to Chincoteague
›
A few days after Christmas, my two youngest children, LillyBear, and I took a trip to Chincoteague island in Virginia. We'd never been ...
2 comments:
Friday, November 18, 2022
MY NEW BOOK: LillyBear Goes to Chincoteague
›
LillyBear and I have an exiting announcement to make! We now have a published book on Amazon.com: LillyBear Goes to Chincoteague . Becau...
Saturday, June 8, 2019
"Newborns with trisomy 13 or 18 can benefit from heart surgery"
›
I just wanted to share an exciting medical journal article, which finally acknowledges that infants born with Trisomy 18 or 13 are more like...
2 comments:
Saturday, March 2, 2019
Lilly's Christmas and the Warrior MAMA IEP Binder
›
Hi everyone! I know it's been SO LONG since I've posted. I actually still think of all sorts of things I'd like to write about...
1 comment:
Monday, July 30, 2018
Dear Lilly ... Happy Belated Birthday
›
Lilly's Memorial Garden this month Dearest Lilly, Happy belated 8th birthday, my sweet girl! Wow EIGHT!!! I am so curious about ...
2 comments:
›
Home
View web version