Pray For Lilly: SOFT's care book

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Showing posts with label SOFT's care book. Show all posts

Showing posts with label SOFT's care book. Show all posts

Thursday, May 29, 2014

The Opening of a Lily Flower and SOFT's Free Care Book (For Trisomy 18 & 13)

On Monday, the first lily finally opened in Lilly's garden! There are hundreds of kinds of lily flowers in the world (as opposed to o...

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About Me

Lisa: Our daughter Lilly was born on July 4 -Independence Day - 2010 and had Trisomy 18 (Edwards Syndrome), a chromosomal disorder. Only 5-10% of children born with Trisomy 18 live to see their 1st birthday. We were blessed to see Lilly celebrate her 1st birthday and then live another 5 months. The purpose of this blog was initially to share Lilly's current condition with our family, friends, and the many others that were praying for Lilly. Lilly left this earth to be with Jesus the evening of December 15, 2011. We will always love and miss Lilly! I have continued this blog to write about us, as we learn to pick up the pieces, work through grief, and continue to live and share about Lilly.

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