I just wanted to share an exciting medical journal article, which finally acknowledges that infants born with Trisomy 18 or 13 are more like...

Weight check = 13 lbs. 2 oz. Yesterday Lilly woke up early and sounded congested and her breathing wasn't quite normal. There was a litt...

Photo credit Steve Rubin Photography Lilly is still having some extra congestion so her cardiologist thought it best we postpone her h...

This past Friday Lilly had her first visit at the eye doctor. A genetic pediatrician she saw months ago thought she might have a cataract. T...

Earlier this week Lilly had her first bite of pureed sweet potato. This video shows that first bite as she considers it. She has eaten sweet...