Now that we're HOME!!! I was able to load up my camera pictures from the hospital. Fighter pilot Lilly: Goodbye fighter pilot, hello can...

William Wallaces's battle cry is sounding over and over in my mind. :) That means YES! we are going home. We have discharge instructi...

Last night Lilly smiled! Several times! I was so excited as this is the first time she's smiled in over a week. Usually it makes her smi...

The doctors have decided that Lilly may leave. We will take oxygen with us and she will be hooked up to it for naps and nighttime. However, ...

Lilly is back on oxygen. It's only the smallest amount. But every time she gets into a deep sleep, she sets the alarms off. For a min...

Lilly had a dip in her breathing early this afternoon. It was brief and did not require oxygen. But it was enough that the doctor felt hesit...

Weight check = 8.3 lbs. (slight drop but we expected it) On the white board in Lilly's room, the nurse wrote the plan for today as: - ke...

Praise the Lord - Lilly turned 7 months old today! There have been at least 4 separate times when it looked like she wasn't going to liv...

When Lilly started fussing this morning, I pulled her blanket back, there was a little bare foot without a sock all still next to the foot w...

I wanted to share a prayer that K.F., a brother in Christ, e-mailed to me. I was so touched by this prayer. And challenged. K. poses some of...

Lilly has had an uneventful afternoon and evening. Yay! She has pretty much slept all day. She really needed to. (God has answered that pray...

When Lilly wants to let you know about something she's not happy about, she usually works up to it. And it almost always starts with a ...

In God's kind providence, Dr. R, Lilly's regular cardiologist, is working in the hospital this week and came to see her. He was sur...

During the night last night, Lilly's fever dropped down to almost normal. This morning it shot back up to 102 degrees. Dropped again to ...

I woke up a little before 5:00 a.m. this morning to the sound of Lilly talking. A nurse was with her and apparently trying to soothe her as ...

My husband and I are at the hospital with Lilly right now. I'm very tired and today was a bit of a blur but I want to write down basical...

Lilly is in the hospital with massive heart failure. Please pray that the medicine will clear up fluid. (This is typed by Lilly's big si...