Pray For Lilly: hospital questionnaire 2016

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Showing posts with label hospital questionnaire 2016. Show all posts

Showing posts with label hospital questionnaire 2016. Show all posts

Tuesday, October 4, 2016

Calling all parents of children with Trisomy 18 or 13! Your input is wanted!

holding baby chicks is so sweet UPDATE: I heard again from the doctor regarding the questionnaire. If you have not submitted your answ...

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About Me

Lisa: Our daughter Lilly was born on July 4 -Independence Day - 2010 and had Trisomy 18 (Edwards Syndrome), a chromosomal disorder. Only 5-10% of children born with Trisomy 18 live to see their 1st birthday. We were blessed to see Lilly celebrate her 1st birthday and then live another 5 months. The purpose of this blog was initially to share Lilly's current condition with our family, friends, and the many others that were praying for Lilly. Lilly left this earth to be with Jesus the evening of December 15, 2011. We will always love and miss Lilly! I have continued this blog to write about us, as we learn to pick up the pieces, work through grief, and continue to live and share about Lilly.

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