Today, March 18, is Trisomy 18 Awareness Day. What is Trisomy 18? It means there are 3 of the 18th chromosomes in the body, instead of the usual 2. That naturally causes real problems for the body. Early help can give these babies a chance to live longer. Lilly lived 17 months and I was grateful for every minute of her precious life. 💙👼
SOFT (Support Organization For Trisomy) (soft.org) is a group that has been educating and helping families with children diagnosed with Trisomy 18, 13 and related chromosomal disorders for over 40 years. I found them so helpful during Lilly's life and I still get cards from them every year, remembering her. The month of March is "Trisomy Awareness Month." See soft.org for plenty of resources.
