You can easily find scientific explanations of Trisomies online. Here is an easy to understand definition. D.V., a genetic counselor that we have talked with explained it this way: "All of our chromosomes contain information vital to survival, so when there is too much information (as with a trisomy when there is an entire extra copy of the chromosome) or too little information it affects development. I often use the analogy of a recipe (e.g. a cake that calls for two eggs, but three are used, with some ingredients being extra or missing having varying effects on the outcome)."
Websites:
Support Organization for Trisomy 18, 13, and Related Disorders (known as SOFT) - resources, publications, articles, family support, etc: http://www.trisomy.org/
Trisomy Talk - lots of good info. plus webinars with important topics: http://trisomytalk.com/
Prenatal Partners for Life - : http://www.prenatalpartnersforlife.org/
Now I Lay Me Down To Sleep - free remembrance photography: www.nowilaymedowntosleep.org
Hope for Trisomy - http://www.hopefortrisomy13and18.org/
Living with Trisomy 13 - www.livingwithtri13.org
Hope for Trisomy: http://www.hopefortrisomy13and18.org
Noah's Never Ending Rainbow: http://noahsneverendingrainbow.org/
Facebook Groups:
Rare Trisomy Parents (was Trisomy 18 Mommies) (for parents of Trisomy 13 children too): http://www.facebook.com/groups/T18Mommies/
TrisomyTalk - www.facebook.com/TrisomyTalk
Hope for Trisomy - www.facebook.com/TrisomyNewsFeed
Trisomy Tea - www.facebook.com/groups/TrisomyTea
Books
SOFT sells "The Book" on Trisomies 13 & 18 called: Care of the Infant and Child with Trisomy 18 or Trisomy 13 This book is available in paperback or as an e-book.
SOFT : Trisomy 18: New and Expectant Parent Resource Guide .
Download for free on their website: https://trisomy.org/t18-new-parent-ebook-form/#/
Or order paperback copy on Amazon: https://www.amazon.com/dp/B0DMSP5KRD
Gift of a Lifetime booklet by Tammy Tate on perinatal care, ideas if you receive the news while pregnant that there's something wrong with your baby: http://www.heartlink.org/pdf/giftofalifetime.pdf
(You can purchase the booklet here.)
Blogs:
Guiliana (mosaic Trisomy 18): http://www.g-giftoflife.blogspot.com/
Julia (Trisomy 18): http://jennychildress.blogspot.com/
Faith (Trisomy 18 and monosomy 21): http://littlefaithtobigfaith.blogspot.com/
Lily (Trisomy 18): http://iseeloveblog.blogspot.com/
Aaron (Trisomy 18): http://compatiblewithjoy-trisomy18.blogspot.com/
Hannah (Trisomy 18): http://kwantfamilycorner.blogspot.com/
Alegria (Trisomy 13): http://alegriaelizabeth.blogspot.com/
Caleb (Trisomy 18): http://calebsjourneyfromgod.blogspot.com/
Note: a quick Google search will reveal quite a number of other Trisomy blogs. This is just my list, of those that I read the most often.
Gift of a Lifetime booklet by Tammy Tate on perinatal care, ideas if you receive the news while pregnant that there's something wrong with your baby: http://www.heartlink.org/pdf/giftofalifetime.pdf
(You can purchase the booklet here.)
Blogs:
Guiliana (mosaic Trisomy 18): http://www.g-giftoflife.blogspot.com/
Julia (Trisomy 18): http://jennychildress.blogspot.com/
Faith (Trisomy 18 and monosomy 21): http://littlefaithtobigfaith.blogspot.com/
Lily (Trisomy 18): http://iseeloveblog.blogspot.com/
Aaron (Trisomy 18): http://compatiblewithjoy-trisomy18.blogspot.com/
Hannah (Trisomy 18): http://kwantfamilycorner.blogspot.com/
Alegria (Trisomy 13): http://alegriaelizabeth.blogspot.com/
Caleb (Trisomy 18): http://calebsjourneyfromgod.blogspot.com/
Note: a quick Google search will reveal quite a number of other Trisomy blogs. This is just my list, of those that I read the most often.
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