I just wanted to share an exciting medical journal article, which finally acknowledges that infants born with Trisomy 18 or 13 are more like...

Amazingly we're home from the hospital - Lilly's shortest hospital stay ever. Turned out her heart was beginning to fail. They think...

Height = 24.5 inches Weight = 12 lbs. 15 oz. Today our whole family proudly took Lilly to her first post-surgery cardiologist appointment. D...

Lilly has been giving a lot of smiles since leaving the hospital yesterday. Here she is smiling on our drive home today. We are so grateful ...

Little does this sleeping girl know ... but the doctors have ordered her release for today!!! We are thrilled! It is so wonderful going fo...

Lilly has had a mostly peaceful day: Lilly's oxygen was turned off this morning at 7:00 a.m. and she has stayed off it. Yay! No more c...

My husband and I joke that being in the hospital can be a bit like being on vacation. We have no other responsibilities and we don't ev...

Today has been, and continues to be, a rough day for Lilly. She has cried and fussed most of the day. I think the longest she slept was ab...

First picture - Lilly's new round gel pillow - I thought the name was funny - "Gel-E Donut." Second picture - Lilly's go...

Today has been pretty quiet so far. Except for when the nurses come in to get Lilly's vitals or turn her to her other side or change a ...

This morning Lilly's siblings and I received an extra special phone call. Lilly was on the other end! She "talked" to us for...

Lilly had a great night last night. She slept through it. They continue to wake her each morning around 5:00 a.m. for a chest x-ray. Then...

Lilly has remained asleep all day, only waking for a few minutes here and there when the nurse was turning her position or changing her dres...

Lilly had a very hard night last night. She was quite upset off and on and for a couple hours straight at one point. The nurse gave more p...

"Hello out there! Would someone please come get all this junk off me? I've had enough already!" Lilly settled down quickly a...

Here's a little video of Lilly waiting for her milk. (It has now been started and she looks so much more peaceful and is starting to do...

When I got the hospital this morning, Lilly greeting me with a little smile, instead of the crumpled face from yesterday. YAY!!! :) Lilly...

Lilly started bleeding this afternoon but they quickly got that under control. An hour and a half after we got word about that we were stil...

Lilly has successfully made it through heart surgery! Dr. C, the surgeon, came in at 2:30 to tell us he had finished and it went as expecte...

Lilly was checked into the hospital by 7:45 this morning. I was given a little hospital gown to change her into - it has pink elephants and...