LillyBear and I have an exiting announcement to make!  We now have a published book on Amazon.com:  LillyBear Goes to Chincoteague .   Becau...

I just wanted to share an exciting medical journal article, which finally acknowledges that infants born with Trisomy 18 or 13 are more like...

Hi everyone!  I know it's been SO LONG since I've posted.  I actually still think of all sorts of things I'd like to write about...

Lilly's Memorial Garden this month Dearest Lilly, Happy belated 8th birthday, my sweet girl!  Wow EIGHT!!!  I am so curious about ...

"I can't say I'm very excited about the new pulse ox, Mama." - Lilly (Dec. 2011) This morning I was reading through a ...

Dearest Lilly, I was so glad to get to bring your Christmas tree Friday.  December 15th ...  your Angelversary.  The events of that day ...

"Mama - just what is this crazy outfit you have on me?!" photo credit: Steve Rubin Photography Dearest Lilly, Letters usual...