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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Wednesday, December 3, 2014

Thanksgiving and Trisomy 18 Girls on My Mind

Last week, our goats were surprised by a family reunion!  Tabby and I loaded them up into the back of our SUV (not an easy task I assure you) and we took them to the L. family's home.  As we drove down the road, I thought it was so funny to imagine if anyone driving behind us noticed the goats through the back window.  What would they think?  "What in the world - that is a strange looking dog.  Wait that's not a dog.  Uh is that a ... goat?  THREE goats?!

Probably didn't happen but it made me and the kids laugh.

"Girls - what have we gotten ourselves into now?"
Hunter,"Hey! Stay on your side or I'll tell mom!"
"Got anything in this place to eat?"
The goats were surprised, and happy, to be at their old homestead and visit with their goat family.)  Nutmeg (our goat) was soon involved in goatie play with her sister Cloves.

"Remember the drill sister!  First we butt heads then we rear up on our back legs!"
The next day we drove up to Fairfax, Virginia - where I grew up - to visit family.  It was snowing when we arrived!

Our visit was good and Saturday morning we headed back to N.C.  But first, we stopped at the grave of Julia, the little girl that had Trisomy 18 and died December 16, 2011 - the day after Lilly did. 

 I really wanted to visit her grave and leave a little gift, for her birthday, which was this past Sunday.  Julia is buried in a section of the cemetery called "Garden of Angels."  She is right next to a little boy named "Solomon" which made me so grateful MY Solomon is alive and well.

I left her a little cherub, blowing her a kiss:

There is a large tree over the little children's graves and it was full of wind chimes.  The sound was beautiful and yet sad.

Of course thinking of Julia, makes me think of Lilly.  And this time I thought of Lilly in her pumpkin hat on her 2nd Thanksgiving:

Lilly - 16 months old - November 2011
I am happy to share that little Mary-Margaret (who received one of our angel boxes) is now 2 months old!  Tomorrow that will be 2 months and 1 week.  :)  Mary-Margaret has been in the hospital with a virus.  Since Lilly almost died from both of her viruses, I was worried!  But "M&M" is almost all better and is due to go home shortly.  Before this hospital stay, she had her picture made in the crocheted dress that was in the angel box we put together.  Aren't these sweet pictures?

"Trust in the Lord with all your heart,
 And lean not on your own understanding;  
In all your ways acknowledge Him,And He shall direct your paths." - Proverbs 3:5-6


  1. Beautiful! Thank you so much for visiting. Hope to be here the next time you come to VA. Love and hugs to you!

    1. You are welcome! Julia will always have a special place in my heart.

  2. Just imagining the wind chimes in the tree at the cemetery makes me cry. Hugs.

    1. I know - it sure made me cry! I keep thinking I need better chimes for Lilly's grave. I have an angel chime but it is such a thin sound ...