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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Saturday, July 4, 2026

Happy Sweet 16th Birthday, Lilly!

Happy 250th birthday, America! ๐ŸŽ† And happy 16th birthday, Lilly! ♥️๐Ÿค๐Ÿ’™ Lilly was born almost two weeks past her due date but that's ok - I love that she was born on Independence Day and had such a fight in her to live. (Hence her nickname "Little Firecracker". ๐Ÿงจ๐Ÿงจ) I wonder how she's celebrating in heaven today. ๐Ÿฅณ I've been thinking this would have been the year I took her to the DMV for her driver's license and that she'd only have a couple years left of homeschool. That would have been if she were "normal". But even though I didn't define Lilly by her having Trisomy 18, it was obviously a huge part of who she was. So would I go back and change that about her? At first maybe, but as I got to know her as the beautiful little girl she was - no. I don't think I would change it. (I know that must sound bizarre to many, but I think other parents in the same situation understand what I'm trying to say.) I still miss you every day, Lilly! ๐Ÿ˜‡๐Ÿ’•