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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Wednesday, August 18, 2010

5 lbs. !!!

Lilly just weighed in at 5 lbs. Yay!!!! And she's moving out of preemie sized clothing into newborn. Overall length fits great, but arm length ... well they're ridiculously long and will just have to be folded up.


  1. Praise the Lord! Keep growing, Baby.

  2. thats showing 'em, can do it!!!

  3. What a mirale she is...God is so good...

  4. I'm so glad you're writing this blog, Lisa. It's great to know how Lilly's doing, and exactly how to pray. She is precious and we know God has an amazing purpose for her.

  5. Lilly is not only a miracle, but she is a living, breathing testament to the beauty of life -- ALL life! Even the lives that doctors think are "incompatible" with their idea of what life should be. You just keep on showing them, Lilly!

  6. Yay Lilly, Yay! You are proving what a little fighter you are. True Grit just like your Mommy.
    You Look BEAUTIFUL in this picture. As soon as you have 'cheeks' chubby enough to pinch, I'm going to be up there pinching them!

    I love you, Shisshy