caption - title

The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Friday, August 27, 2010

A possible surgeon!

I've been receiving a number of suggestions for surgeons for Lilly's needed open-heart surgery for which I'm grateful. Following up on them all seemed overwhelming, but thankfully my aunt and cousin offered to do that for me. So my aunt has been spending time calling all over the country inquiring if these suggested hospitals would do surgery on a trisomy 18 baby. Praise the Lord, she finally found one that does the operation on T-18 children! Wolfson's Children's Hospital in Jacksonville, Florida. They are willing to consider Lilly's case. They want to see the video of her echocardiogram first and then will decide. We should have their decision next week.


  1. Yay! I wondered how you were able to follow all the leads. Thank heaven for aunts and cousins. :)

  2. To Have and to Hold...and while we have her, we hold her...take it from an old lady, we will never look back with regret that we held her...but its the times that we did not, that we will forever mj