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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Wednesday, September 29, 2010

Surgery's Eve

Weight check = 5.4 lbs.

Pre-op for tomorrow's (Thursday's) surgery began at 3:30 a.m. today. Lilly had a chest x-ray and blood taken. (My husband said the nurses tried to keep from waking him up but it's hard to sleep when someone lays a big heavy blanket on you to protect you from radiation from the x-ray machine!)

Chest x-ray was normal, other than the fluid around the lungs. Bloodwork good - electrolytes better.

Lilly's continuous feeding of milk was stopped this evening, so that her stomach will be empty before she's administered anesthesia tomorrow. (Which she'll get through an IV at the neck or groin area. Ouch!)

Surgery prep will begin between 7:30 - 8:00 a.m. Thursday. The surgery itself will take about 3 hours, if all goes well. Then she will stay in the ICU for several days. A nurse will stay in her room for the first 24 hours.

We learned that Lilly will have a breathing tube (down her throat) for maybe up to a couple days after surgery. She also may have a chest drain. It sounds like she'll look pretty terrible at first. But if she survives, then all this is worth it. (And right now we're both feeling really positive about her surviving.)

We were really touched to learn today that our church will be fasting for Lilly tomorrow.

Today I read the following passage to Lilly, while imagining what an exciting moment this must have been for these parents and children: "People were also bringing babies to Jesus to have him touch them. When the disciples saw this, they rebuked them. But Jesus called the children to him and said, 'Let the little children come to me, and do not hinder them, for the kingdom of God belongs to such as these. I tell you the truth, anyone who will not receive the kingdom of God like a little child will never enter it.'" Luke 18:15-17


11 comments:

  1. My heart is with you. Be strong little Lilly. xo

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  2. "Seek the lord and His strength;Seek His face continually."Psalms105:4
    praying for you all !

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  3. "But now, this is what the LORD says—
    he who created you, O Jacob,
    he who formed you, O Israel:
    "Fear not, for I have redeemed you;
    I have summoned you by name; you are mine.

    "When you pass through the waters,
    I will be with you;
    and when you pass through the rivers,
    they will not sweep over you.
    When you walk through the fire,
    you will not be burned;
    the flames will not set you ablaze.

    "For I am the LORD, your God,
    the Holy One of Israel, your Savior;" --Isaiah 43:1-3

    Be strong, little granddaughter. you are loved....

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  4. O God, the strength of the weak and the comfort of sufferers: Mercifully accept our prayers, and grant to your servant Lilly. the help of your power, that her sickness may be turned into health, and our sorrow into joy; through Jesus Christ our Lord. Amen.

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  5. Be strong Little Lilly; God is with you!!!!

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  6. There is no doubt you are loved little Lilly. I pray that God guides the surgeon's hands and that you not only survive, but thrive! I pray that you are comforted by His hand and that you suffer none. I am also praying for your family. God, give them all the strength to endure this big bump in the road we call life. Be strong little one....people you've never even met are praying for you and your family right this very minute! God bless :o)

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  7. We are praying for you, Lilly! May the Sovereign Lord preserve you and keep you strong during and after the surgery. We look forward to hearing more news.

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  8. I'm praying for Lilly and for your family. Jesus loves Lilly very much and already paid the price for her to be well. "Many followed Him, and He healed them all..." (Mat. 12: 15) "...for by His wounds you were healed." (1 Pet. 2:24)

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  9. I am praying for Lilly today. I hope all goes well with the surgery. I have been following your blog, which by the way is such a neat way to tell about Lilly. I hope to be able to be in touch with you soon. We must remember God has a plan for all of us.

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  10. Hebrews 11:1 says: "Now faith is being sure of what we hope for and certain of what we do not see." I am praying that God grants you extra faith today. It is easy to believe in what we can see, but to have faith and be CERTAIN can be difficult in the things we cannot see. But I am certain that God is always in control. He is always present and if we look with our hearts we can see Him. I have been praying on and off all morning for you, your family and especially Lilly.

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  11. Our Lord is strong in you...He's blessed you with strength and faith! We are continually praying that God will give Lilly health. I am watching, amazed and with a very full heart. God bless Lilly, and her Mum and Dad!

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