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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Friday, February 27, 2015

Snowmen and grief revisited

We got more snow Wednesday night.  It had rain mixed in and was slushy.  BUT ... it was good enough to make a small snowman.  Solomon was thrilled!  He has had a hard time understanding why none of the recent snows were "snowman snows."  Every kids book you look at that has snow in it, always has a snowman.

Solomon thought his John Deere hat was the perfect hat for a snowman.  (It was mainly for photo purposes though - couldn't leave it there or the puppies would tear it up!)

Then Solomon took great delight in smashing the snowman.  Ha-ha-ha ...

The snow and snowman made me remember Lilly and a picture I have of her by a snowman:

Lilly - December 2010
I don't know if Lilly ever saw that snowman - the snow was so bright she wouldn't open her eyes!

"Oooooh!  That's bright!  Mama - where are my sunglasses?"
Yesterday I was heartbroken to read that little Mary-Margaret had gained her angel wings very early that morning.  (Mary-Margaret's family received one of our "angel box" donations last year.)  Mary-Margaret had Trisomy 18.  She lived 5 months and 1 day.  That is a life that was way too short and yet for a baby with T-18 I know she lived longer than most.  Please pray for her family.

sweet Mary-Margaret
I always feel a sad, sharp pain whenever I read about a child with Trisomy 18 dying.  (Any child's death is sad, but the ones with T-18 are just so close to home, I guess that's why those hurt the most.)  It's like a wound that can never fully heal gets stabbed again.  Because I know what it feels like, I just hurt for the family.  I think of what they must be going through.  And then I end up with flashes of what we went through when Lilly died.  I think of our babies in heaven.  So awesome for them.  So sad for us.

But I guess it's all "normal."  Sigh.  Just because it's "normal" doesn't mean I like it. 

I'm sure many of you reading this understand.

"The LORD is close to the brokenhearted and saves those who are crushed in spirit." - Psalm 34:18


  1. That's s handsome snowman, Solomon! Wonderful pics of Lilly in her pink snowsuit...

  2. Oh Solomon looks so adorable next to his snowman and of course Lily looks lovely also. Praying that the Lord comforts your heart today!