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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14
Showing posts with label g-tube surgery. Show all posts
Showing posts with label g-tube surgery. Show all posts

Thursday, May 5, 2011

Home!

We are home from the hospital! Lilly had a great day - she was awake and smiling and talking for much of it. Feedings through the g-tube are going well. I'll post more details asap!

Right now we're thanking / praising God that we are home and all together again! :)

Here is a little video I took today of Lilly:








Wednesday, May 4, 2011

Happy 10-month birthday, Lilly

Weight check = 10.7 lbs.


Lilly celebrated her 10-month birthday by her first g-tube feeding. Please pray that she will tolerate her feedings.



Lilly is tired of being at the hospital and hopes to go home tomorrow.



(This update is again written by Lilly's big sister, T.

Tuesday, May 3, 2011

Miss Spitfire is doing fine

Lilly came though her surgery fine. When she woke up she was MAD! The nurses called her little "Miss Spitfire". The scoping went well and no problems were found. A hearing test revealed some hearing problems. Lilly is now resting comfortably.

(This update is by Lilly's big sister T.)