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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Monday, May 7, 2012

Miscellaneous pictures and tidbits

"If Love alone could have spared you ... you would have lived forever. Lillian Eva 2010-2011" 

Thus reads a stone we have in Lilly's memorial garden.  Of course Lilly is living forever.  Just not on earth with us.  The love of Jesus has spared her for eternity.  :)  Still, I like the wording of the stone.  It's hard to see in the picture, but one of the bulbs in her garden is growing through the heart hole.  It is a star gazer lily.

We bought a couple of plants this past Saturday and I just had to get this one as well. It has red, white, and blue flowers!

I recently asked on the Trisomy 18 Mommies group where I could get a T-18 Awareness sticker for our vehicle.  In general I don't do bumper stickers!  But sitting in traffic recently I realized what an opportunity it would be for others driving behind us to read "Trisomy 18."  All part of our grassroots effort to help other people learn a little something.  :)  Two moms answered that they would be happy to send me some magnets for free!  (They both have children with Trisomy 18 that are currently alive, and over one year old - one is a girl, the other a boy.)  Both moms kindly sent two magnets each.  So, that gave me one for each vehicle, and one of each for the refrigerator. 

My daughter T. enjoys beading and she made me a special bracelet with red, white, and blue and stars, in memory of Lilly.

The weather last week was HOT.  Several days in the 90s meant that the kids could do some water play after schoolwork was finished.  My son was anxious for me to get Lilly's pool out, dubbed "the lily pad" because he said it made him think about Lilly. 

Here's a picture of Lilly last July, with big sister T., staying cool in her "lily pad."

1 comment:

  1. oh I love the picture of Lily in the pool so sweet! Saying a prayer for you Lisa.