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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Wednesday, March 13, 2013

Putting Faces to Trisomy Awareness

A mama that has a little girl with Trisomy 13, and who has founded Eva's Gift Shop to help raise Trisomy awareness, has put several collages featuring Trisomy children.  Awhile back she asked that those of us who were willing to submit a photo of our child and a word describing then.  I sent her Lilly's photo and the word "firecracker".  To me "firecracker" isn't just a 4th of July word (Lilly was born that day) but also a word meaning that she was a spunky fighter. 

Here is the collage that Lilly is in (look under the "Y" in "Trisomy"):

The mama of an angel named Roisin recently did a balloon release in honor of her sweet girl, and other angels.  Here is Lilly's balloon and tag:

Isn't the tag just beautiful?

Here is a new website (at least new to me) called The Arms of an Angel.   (  Their mission is to provide emotional and financial support to families affected by Trisomy 18.  It was begun by a mama who had a stillborn baby girl that had Trisomy 18.  Her name was Aryiana.  You can read her story here

It is so wonderful seeing how many parents of children with Trisomys find ways to reach out to others.  They find healing in this and are able to bless others.  God certainly knows what He is doing when he gives these special children to the families that he does!

1 comment:

  1. Love the collage and balloon ideas!! There's so many awesome ways to remember these angels....H