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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14
Showing posts with label pneumonia. Show all posts
Showing posts with label pneumonia. Show all posts

Wednesday, February 17, 2016

Tabby's late night visit to the emergency room

There is a 24-hour stomach bug making it's rounds in our area.  Solomon had it Sunday and then I had it Monday night.  Yesterday Tabby was going about her morning routine when she said her stomach suddenly didn't feel right.  Then Solomon threw up again. Then she did.  Thankfully I did not anymore.  So Tabby stayed home from school.

By mid-afternoon, she began complaining that her whole body was in immense pain.  As it grew worse, she began having breathing issues.  (She described it as her lungs feeling "crumpled" and "burning" which makes it hard to get a deep breath.  This continued until she feel asleep.  Then in the evening, she woke up and the pain was still there.  Now she said it was all over her body and that it felt like someone snapping her back into pieces.  She cried off and on.  I was looking up symptoms online and we just couldn't figure out what was up.

At about 9:30 she was crying and afraid for me to leave her because she thought she was going to die, it was so bad.  So ... I packed a little bag for the hospital and off we went.

The emergency room was hopping so we had a longer wait than I had hoped.  But finally Tabby was in a bed.  She had blood drawn for lab work, was hooked up to an IV, and had a chest x-ray done. 


Over the next couple hours, two different pain medications were give to her but neither really helped much.  The doctors were puzzled.  Lab results were good.  The x-ray showed that only a small spot of the pneumonia remained her left lung.  She had no congestion of any kind.  So they finally gave her morphine.  Oh yeah - that did it! 

Tabby was discharged about 5:30 this morning.  I was instructed to follow up with her pediatrician today.  And she was given a new toy.  A spirometer.  She is to practice breathing into it five times a day to strengthen her lungs.

Here she is, showing her "excitement" over the new device.  (As you can imagine, Hunter is fascinated by it and wanted to know all about it as soon as he saw it.)


Tabby's pediatrician wasn't totally sure what was going on either, when we saw her today.  She is going to do some research.  However, she did have one theory right off the bat.  Typically, when Tabby's body is fighting something, she gets a fever, then headache.  However, her body is still really depleted from the pneumonia.  And this time it reacted differently to fighting the stomach bug.  There are people, who's bone marrow reacts to these "fights."  And the way it reacts is for the body to feel intense pain all over.

Hmmmm.  The bone marrow and immune system work together so that does make sense.

But I just pray that this is it for hospitals for a long time for us.  We are SOOOO ready to get back to a more steady normal around here.

Tuesday, January 19, 2016

To the hospital and back again - Tabby's unexpected adventure

Last Thursday evening, I decided that Tabby needed to go to the doctor.  She just couldn't keep food down with the persistent coughing.  She had lost about 10 lbs. and didn't need to lose more.  Then Hunter started coughing until his supper came up - third night in a row.  I told him he would go to the doctor too.  Then Solomon had a rough night of coughing.  So Friday morning I called the pediatrician and got all three kids a mid-morning appointment.

After I made the appointment, Tabby announced that she had lost more than 10 lbs. - it was now 26 lbs.  Oh my goodness.

Before long I learned that all three kids had pneumonia!  Their doctor said it is rampant in this area right now.  And highly contagious.  Soon we were headed to the pharmacy for two antibiotics per child and medicine for the nebulizer.  (Thankfully I still had Lilly's nebulizer.)

By evening, Tabby's breathing wasn't good and her lungs hurt her very badly.  She and I headed to the hospital.  I figured they would give her a more powerful breathing treatment and send her home.


The breathing treatment didn't really work. 
 

Tabby kept having what I called breathing spasms.  Her throat would close up and she couldn't breath well.  It was scary.

Soon she was on oxygen.


The hospital we were at did not have a pediatric unit.  So we were transferred to the big hospital in Raleigh that Lilly spent time at.  We rode in style - Tabby on a bed on wheels in the back, and me as a passenger in the front.


We arrived at 11:00 p.m. and the check in and initial examination took awhile.  Tabby was on oxygen and an IV and pulse ox.  Finally, after midnight, we were alone.

We ended up talking about Lilly a bit.  This happened so much like her hospitalization in Jan./Feb. 2011 for a virus.  (Honestly I had a fear of coming back to this hospital.  But this helped me work through that.)  Tabby knew I was really worried about her.  She said "I'm not Lilly.  I'm not going to die."  Then she said "You have bad luck with daughters."  My response was "God gave me the exact children He wanted me to have."

Saturday Tabby did a good job eating and keeping her food down.  Even though it was just "hospital food."


The doctors were all really concerned about her loss of 26 lbs.  And Tabby's lungs hurt her really bad.  She found a good distraction - watching FOX News and HGTV.  We don't have cable TV at home so this was a treat for both of us.  Tabby's actually a politics junkie and was really excited that we got to watch some of the Republican candidate debates that night.

There was a Ronald McDonald room down the hall where I was able to go and eat some food for free: Hot Pockets, chips, applesauce, and pudding.  It wasn't Trim Healthy Mama but oh it was good!  The volunteer in there asked me to please pick out a little homemade stuffed animal from a basket for Tabby.  I picked a little green dog.  She really liked it!  She named it Barkdogeïphontes from the character Argeïphontes (Hermes)  from The Odyssey. 

Later that day, Tabby ended up with an Xbox.  This was her first time playing one.  She played several Lego games:  Star Wars, Indiana Jones, and Lord of the Rings.  It helped her stay quiet and distracted from her discomfort.


Sunday morning she was off the oxygen.  And we were so surprised to look outside our wonderful big window and see SNOW!  It snowed pretty hard for a bit but didn't stick.  It was so pretty.

One of the nurse assistants came in for a bit and played Lego Star Wars with Tabby.  His name was Russ and he was really kind.  After he left, Barkdogeïphontes ended up with a nickname:  Russ.  We really liked all of the nurses Tabby had.  Some were more personable, but all were kind, gentle, and seemed to really care.

Sunday night Tabby was back on oxygen.  Sleeping was just harder without it.

Monday morning, Tabby was off oxygen, but still having some of the "breathing spasms."  Painful and exhausting.


When doctors made their rounds, they decided that Tabby would recover better at home.  So she got her discharge papers that afternoon and we got ready to leave.



Frank and the boys came to pick us up and off we went.  After a nap and supper, Tabby began to perk up a little.


The kids all finished one of their antibiotics today.  They will be on the other for several more days.  (I'm stuffing as many probiotics and yogurt into them as they will let me to help their upset from the antibiotics tummies.)  And the boys are continuing to use the nebulizer some.



Hunter and Solomon are doing much better.  They still tire easier than normal and still cough.  But they are much more active.  Tabby is having a good day resting on the couch and eating huge meals.  She has a lot of weight to gain back.  Her lungs still hurt, but not as terribly as they did.

We can not do nebulizer treatments around here without thinking of Lilly.  It makes me smile.  She had high opinions about that nebulizer and thought they were most annoying!

 


Solomon and I just loaded the above grumpy Lilly pictures.  We did find another one where she looked pretty calm that he wanted me to post:


What a wild ride January has been so far.  Good thing I didn't make any new years resolutions or goals to accomplish in January because the month is almost over.  We will continue to take it slow and encourage complete recovery around here for a bit.

"The steadfast love of the LORD never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." - Lamentations 3:22-23