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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, February 24, 2011

Flashback: The 1st heart ultrasound

Part of a series on my pregnancy with Lilly.

On March 12, 2010 we went to the hospital for an ultrasound with a pediatric heart specialist. We found out that Lilly had a hole in her heart. A ventricular septal defect, or VSD. That was horrible to hear. But we were assured that it was correctable by surgery and the surgery was highly successful. (I could not imagine an infant in surgery.) The baby would be on medications and would probably need the surgery between 4-6 months of age.

We heard from a number of people that they knew babies that had the holes that closed up on their own. So we added that to our prayers for Lilly.

After my midwife got that update, she said I would need to deliver at the hospital, rather than at the birthing center. Though that was a minor thing by now, it was very very disappointing.

A few days later, our pastor and an elder came over to lay hands on me and pray for Lilly.

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