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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Sunday, July 3, 2011

Visit to the eye doctor





This past Friday Lilly had her first visit at the eye doctor. A genetic pediatrician she saw months ago thought she might have a cataract. Thankfully Lilly does not have cataracts. In fact, her eyes are very healthy. (She made the eye doctor work really hard to check her eyes. The doctor said she was sweating by the end of Lilly's appointment!)


Lilly's eyes still "bounce" though not as much as they used too. Both eyes don't always work together. She does not track things well at all. In fact, the eye doctor could only get her to track an object that had a light on it. She didn't focus on any of the other brightly colored objects the doctor held up for her. The doctor thinks this is probably just a developmental delay.


It is not always easy for Lilly to make eye contact with us. But when she does, she is able to hold contact for up to about 2 feet distance. That is improvement though, so Lord willing she'll just keep getting better in this.


She'll go back for another eye check in 6 months.


I asked if Lilly's eye color was still changing and the doctor said it was done. Lilly's eyes have turned from a dark blue to an almost olive shade of green.


My husband talked to the cardiologist nurse in Florida on Friday and she said that hopefully, we will have an answer about whether or not they will agree to do Lilly's heart surgery (VSD repair) by the end of this week. The cardiologist team need to discuss her case and then she'll be discussed at their meeting with the surgeon.


"No eye has seen, no ear has heard, no mind has conceived what God has prepared for those who love him . . ." - 1 Corinthians 2:9


Lilly has already had two parties to celebrate her first birthday, which is tomorrow, July 4. I'll blog on these asap!

1 comment:

  1. Happy 1st Birthday, Lilly!!! We love you and your whole family!

    ReplyDelete