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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, March 14, 2013

Lilly is featured on SOFT's website today

SOFT (Support Organization for Trisomy) is featuring different children each day on their homepage for Trisomy Awareness Month.  Lilly and Giuliana are today's children.  (I've mentioned Giuliana many times on this blog.  She has mosaic Trisomy 18 and is thankfully still alive.)  You can click http://trisomy.org/ to go to the homepage, and then scroll down just a little.

Here are the girls pictures that are posted:



What a beautiful surprise this was for my day!  :)
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1 comment:

  1. AnonymousMarch 15, 2013 at 7:57 AM

    Oh Lisa That must have made your day!!!!! Smiles and tears....love you. Hope

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