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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Tuesday, December 3, 2013

Day 5 - Remembering Lilly - November 2010

This is my 5th post in a 17 post series summarizing each of Lilly's 17 months of life.  To learn more details about Lilly's daily life, just click the appropriate month and year of my Blog Archive on the right side.

November 4, 2010 - December 3, 2010

Lilly turned 4 months old on Nov. 4, 2010.  We were thrilled every new month she reached.  It was a time of celebration!

During this month, I began to get in contact with a lot more of the Trisomy 18 community online.  (I previously was in contact with two T-18 mom's.)  Talking by phone and email I tried to learn as much as I could.  There are a number of Trisomy 18 blogs out there which were exciting to find.

Children with Trisomy 18 are delayed in most things it seems.  But this month was exciting because Lilly finally started doing a bunch of younger baby things.

The most glorious was when she began to smile!

Lilly also began to put her knuckles into her mouth.  Because her hands were still clenched, it was her knuckle that went into her mouth, instead of a finger.

She discovered her tongue and enjoyed sticking it out.

She loved the word "boo" and whenever we'd say it she would react with a noise.

For Lilly's first Thanksgiving, I traced her hand for a turkey hand print.  That clenched little hand made an interesting little turkey:

Finally, Lilly began to get quite chatty.  She could go on for awhile doing her baby babbling.  She liked "talking" the most at night, once Tabby and Hunter were in bed.  I guess she felt like she didn't have to compete with the other chatterboxes in the house!

bundled up soft and snugly for an outing
So all in all, it was an exciting month for new things!

"Because of the Lord’s great love we are not consumed, for his compassions never fail.  They are new every morning; great is your faithfulness." - Lamentations 3:22-23


  1. Enjoying the pictures... Precious.

    1. Thanks Sandra! Glad to know someone out there is still reading these posts! ;)

  2. I love getting to know Lily better. Such a sweet series you are doing!