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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Friday, February 27, 2015

Snowmen and grief revisited


We got more snow Wednesday night.  It had rain mixed in and was slushy.  BUT ... it was good enough to make a small snowman.  Solomon was thrilled!  He has had a hard time understanding why none of the recent snows were "snowman snows."  Every kids book you look at that has snow in it, always has a snowman.

Solomon thought his John Deere hat was the perfect hat for a snowman.  (It was mainly for photo purposes though - couldn't leave it there or the puppies would tear it up!)


Then Solomon took great delight in smashing the snowman.  Ha-ha-ha ...


The snow and snowman made me remember Lilly and a picture I have of her by a snowman:

Lilly - December 2010
I don't know if Lilly ever saw that snowman - the snow was so bright she wouldn't open her eyes!

"Oooooh!  That's bright!  Mama - where are my sunglasses?"
Yesterday I was heartbroken to read that little Mary-Margaret had gained her angel wings very early that morning.  (Mary-Margaret's family received one of our "angel box" donations last year.)  Mary-Margaret had Trisomy 18.  She lived 5 months and 1 day.  That is a life that was way too short and yet for a baby with T-18 I know she lived longer than most.  Please pray for her family.

sweet Mary-Margaret
I always feel a sad, sharp pain whenever I read about a child with Trisomy 18 dying.  (Any child's death is sad, but the ones with T-18 are just so close to home, I guess that's why those hurt the most.)  It's like a wound that can never fully heal gets stabbed again.  Because I know what it feels like, I just hurt for the family.  I think of what they must be going through.  And then I end up with flashes of what we went through when Lilly died.  I think of our babies in heaven.  So awesome for them.  So sad for us.

But I guess it's all "normal."  Sigh.  Just because it's "normal" doesn't mean I like it. 

I'm sure many of you reading this understand.

"The LORD is close to the brokenhearted and saves those who are crushed in spirit." - Psalm 34:18

3 comments:

  1. That's s handsome snowman, Solomon! Wonderful pics of Lilly in her pink snowsuit...

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  2. Oh Solomon looks so adorable next to his snowman and of course Lily looks lovely also. Praying that the Lord comforts your heart today!

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