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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Monday, July 4, 2016

Happy 6th birthday, my Lilly girl!

Dear Lilly,

I can't believe you would be celebrating your 6th birthday with us if you were still on earth.  Wow!  Six years old!  I wonder a lot what you would be like. There's not one day that goes by that I do not think about you.  Your brothers wonder if you would like playing with them.  Your sister wishes she could still fix your hair and hold you.  Your daddy misses his girl very much.  No matter how long you are gone, there's still a big hole in our family where you belong.

We will be celebrating your birthday today in what has become our tradition.  Parade, cake, balloons, fireworks.  There is much comfort in traditions we have learned.  Solomon is old enough to remember a little of it from last year and he is very very excited about celebrating this year.  We picked out your cake at the store and he kept shouting how "beautiful" it was!  And he's already claimed blowing out your candles.  He helped me pick out 6 birthday balloons for you.  (Hunter was disappointed there were no balloons that said "Feliz Cumpleanos" on them like we ended up with last year.) 

All the celebrating our country does today - all the red, white, and blue - all the reminders of our freedom and independence.  And all the many many reminders of you.  I'm so glad that God had you be born on the 4th of July!  You were two and a half weeks late but it turned out to be just perfect.  God never makes mistakes and He made you just perfect the way you were.

I love you forever and ever my sweet girl and will see you again one day!

Love always,
Mama

The day Lilly was born, July 4, 2010, followed by lots of Lilly-colored outfits in her 1st birthday month, July 2011:

July 4, 2010




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