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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, October 6, 2016

Tabby Update: It's not Lyme's disease

Finally got Tabby's results today from the Lyme disease test she took last week.  And ... it's negative.  The test's aren't totally accurate, but we'll go with the "no" for right now.

Dr. H, her new doctor, had gotten copies of Tabby's lab work from her many (eight!) hospital visits this year.  He noticed that her neutrophils were high on every single test.  (Neutrophils are a type of white blood cell, which fight infections.)  The normal range should be 40-60%.  However Tabby's scores were all high - all the way up to 85%.  Dr. H said that was a red flag that her body is battling an infection/inflammation.  

Tabby had blood drawn today for more labwork.  Plus she has to give a fecal sample kit (what fun) for some "GI Health Panels."  These are 22 individual yet related tests.  The informational paper I was given listed screens for:

fungi and yeast
antibodies to gluten
digestive function markers
markers of intestinal inflammation
fecal occult blood
total SlgA
antibodies to dairy, soy, egg proteins

I think it will take about 2 weeks to get all the test results back.  (Sigh.  Wish those companies could do faster turn around times!)

In the meantime, Dr. H gave Tabby two things to begin taking daily.  One is something to mix into a drink once a day called RepairVite.  This should help her intestinal tract and lining to begin healing.   The other product is PRP Balance.  This is a spray that she will use twice a day.  It is colostrum to help modulate normal immune responses.  

She'll also continue the regime of Plexus products I have her on because she now has several hours, most days, where her stomach and chest pain is gone, and she"only" has bad joint pain and weakness.  (I have her on Slim, Ease, Nerve, ProBio 5, and BioCleanse.)

We feel positive, working with Dr. H.  But we sure wish everything could be done super fast.  It's hard to see normally energetic Tabby sitting or laying down, day after day.  Tomorrow will mark 1 month straight of her being in pain every. single. day.

We are so grateful for your prayers.


  1. This is so unbelievable! Hugs.

  2. Life is bizarre! But the Lord is watching over you! We are with Samaritan Ministries and you were on our list this month. As we were praying for you, the Lord impressed several specific verses on our hearts. I have not been able to get you off my mind today, so have found this blog & I KNOW that God is taking care of you. HE is faithful! Beth xxxooo

    1. Thank you so much Beth! I read your comment to Tabby and we are both so grateful. At times we feel too tired to even pray much but what a blessing to know so many others are praying. God bless!