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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, April 5, 2012

The Dragonfly Project

Lilly's crazy sock monkey has a new friend. A rainbow bear. It's in honor of our rainbow baby.

Today I had an appointment at the birthing center to check up on rainbow baby. My son went with me and was so excited to hear the heartbeat. Only we didn't hear it as clear as usual - the baby kept moving around really fast. I'll be 17 weeks tomorrow, and will be receiving a call shortly to set up the ultrasound.

Last week I got a really neat dragonfly card and keychain in the mail from The Dragonfly Project. I had never heard of this group before. But apparently they send sympathy cards out, a few months after the death, to let family and friends know their loved one is not forgotten. I don't know who submitted our name, but we are thankful!

The card had this story in it by Walter Dudley Cavert:

"In the bottom of an old pond lived some grubs who could not understand why none of their group ever came back after crawling up the lily stems to the top of the water. They promised each other that the next one who was called to make the upward climb would return and tell what had happened to him. Soon one of them felt an urgent impulse to seek the surface; he rested himself on the top of a lily pad and went through a glorious transformation which made him a dragonfly with beautiful wings. In vain he tried to keep his promise. Flying back and forth over the pond, he peered down at his friends below. Then he realized that even if they could see him they would not recognize such a radiant creature as one of their number. The fact that we cannot see our friends or communicate with them after the transformation which we call death is no proof that they cease to exist."

I thought that story was beautiful and imagined what our Lilly might look like in heaven right now. :)


  1. your story touches my heart cause 2 yrs ago my friends daughter passed away from trisomy 18. lilly will be in my thoughts and prayers

  2. Have you seen this? I couldn't help but send it to you this Easter season, folding a lily napkin...

    Happy Resurrection Sunday!