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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, April 26, 2012

Lilly buys herself a present

Throughout Lilly's life, kind relatives or other people would send encouraging cards with a "little money" tucked in for "something for Lilly."  I saved all that money in a jar until I could think of the perfect thing for it. 
Well I finally decided what that "special something" was.  A really great frame for the collage we made for Lilly's viewing and funeral.  I found a beautiful wood frame - in Americana red (how appropriate) in a catalog and knew that was IT. 

The frame arrived yesterday and I excited put the collage right in.  Then I noticed the large crack at the bottom of the frame.  Sigh.  Nothing is easy!  I contacted customer service and they said they would send a replacement right away.  And that no need to return the damaged frame due to the circumstances.  (I couldn't help but share what it was for so they would see the importance of it!)  So yay!

I've mentioned before about how much I love the morning sunrise.  One Trisomy angel mom recently posted this picture of a gorgeous sunset:

The caption:  "At the end of the day all the children of heaven come together to paint the colors of the sunset."

It's so easy to forget how beautiful the sky is - at so many times of the day - because we're such a self-focused culture that tends to just stay inside so much.  And much of our modern way of living does not lend itself to us fully enjoying the beauty of the outdoors.  But when we do take the time, it is so incredibly refreshing.

"And God said, “Let there be lights in the vault of the sky to separate the day from the night, and let them serve as signs to mark sacred times, and days and years, and let them be lights in the vault of the sky to give light on the earth.” And it was so. God made two great lights—the greater light to govern the day and the lesser light to govern the night. He also made the stars. God set them in the vault of the sky to give light on the earth, to govern the day and the night, and to separate light from darkness. And God saw that it was good. And there was evening, and there was morning—the fourth day." - Genesis 1:14-19


  1. How sweet.... I bet when the sky is red, white, and blue it's Lilly winking. :-D