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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, April 12, 2012

Lilly's new Trisomy 18 ornament

Lilly has a new ornament for her memorial tree. One that I will probably leave up permanently. It has a blue ribbon (representing Trisomy 18) and that is on angel wings.

Last month, the mama of Sophee (a little girl with Trisomy 18 that lived from 11/23/10 - 6/12/11) hosted an online auction to raise awareness for Trisomy. Proceeds benefited a Trisomy support group. I wanted to help out so I bid on a few things. I won this ornament.

The auction also had a special teddy bear giveaway. I actually won that! I am so excited! I think the only thing I've ever won was 1st place in the Metallica Club contest two times in a row back when I was in college. (Ha! That feels like a million years ago! But I guess almost 20 years is more like it.) Anyway, what makes this teddy bear so special is that it is being handmade by a mom in memory of her baby girl that was born sleeping. (The baby, Maisie, had Trisomy 18.) She is using one of Lilly's flannel receiving blankets to make the bear with. I'll share more about the other special features when I get the bear and post a picture.

Thinking about this bear, and now seeing rays of sunlight stretching across our lawn, have put cheer in my heart this morning. Yay! I LOVE the sunrise - we really can't see it well in our neighborhood - too many houses and trees in the way. I hope that one day, we can move to our own little farm that's on several acres and that it will have a clear view of the sunrise. It can be such a renewing thing to clearly view another of God's masterpieces painted in the sky each morning.

"[God] is like the light of morning at sunrise on a cloudless morning, like the brightness after rain that brings grass from the earth." - 2 Samuel 23:4

1 comment:

  1. I'm glad you had cheer in your heart this morning. :) God is good!