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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Tuesday, July 10, 2012

If only people knew ...

T. made a beautiful present for me.  She got a doll and then sewed an angel outfit, complete with wings, and gave it to me.  It turned out beautiful.  The perfect place for it was next to my favorite picture of Lilly dressed like an angel.  What a beautiful little girl!  :)

"See that you do not despise one of these little ones, for I say to you that their angels in heaven always look upon the face of my heavenly Father." - Matthew 18:10

Here is an close up of the angel doll:

Earlier today I read yesterday's post on "The Other Lily's" blog.  It made me cry.  Lily's mother wrote about someone online that made nasty comments about an article on a boy with Trisomy 18. 

(I googled the original article and found it here.)  This person posted on this forum.  She pulled out quotes from the news article and gave her comments on T-18 children, whom she called "defective loaves."  I skimmed the comments that that person got in response to her post.  All seemed to agree that children with Trisomy 18 are a drain on taxpayers, completely unworthwhile as people, and the only kind thing their parents could have done was to have aborted them.

Honestly I just shake my head at forums like this person posted on.  Just as they would think I am a monster for allowing Lilly to live, I think they are godless and sadly ignorant.  Something like this is not really worth my time.  Yet I couldn't help but think of these comments today and wonder, what could be done to change their minds?  To help them see the real treasure that "a Trsiomy-18 Tard" is? 

Probably nothing, unless they could meet some of these children in person.  The Other Lily's mother invited the derogatory commenter to her home to meet her child and see how that child lived.  Perhaps that would change that person's heart. 

Sadly though, this is the state of America in general.  And with the increasing lack of belief in God, the lowering of standards and morals, and the new health care laws (i.e. health care rationing and it's corresponding loss of choice and freedom) I don't see anything improving.

Last year someone left a negative comment on my Lilly blog where, among other things, they accused my husband and I of "condemning Lilly to life."  (You can see that comment in full and read my response here.)  I thought of that comment today, after reading The Other Lily's blog post.  I also thought of several people, who after our Lilly died, expressed that they were surprised that we missed Lilly so terribly.  (Because she must have been a burden.) 

I think that as humans, it is often hard for us to really understand much unless we ourselves experience whatever it is.  But maybe, just maybe, through this blog some readers will come to understand the true blessing of a child like Lilly is.  Lilly is in heaven now, but her life continues to bless us in more ways than we ever thought possible.

And for anyone who still thinks these precious Trisomy 18 children can not interact and are just a vegetable, I share a link to a post from last November of one of my favorite Lilly videos.  The one where Lilly laughs and laughs in response to her caterpillar Hank.  It makes me smile just to think about.


  1. Mallorie's MommyJuly 11, 2012 at 9:25 AM

    I can't imagine anyone with children feeling this way. It's disgusting to me.....really. There is a lack of respect for human life in this country that makes my jaw just drop.

    And I certainly cannot imagine people finding it odd that you'd miss Lilly so terribly after her death. Of COURSE you'd miss her. She was YOURS just as T and H are and the new baby will be. You bonded with her. With God's help, she was created by you. Our children are never burdens. She required more of your time, but not in a burdensome way.

    What is this world coming to?

  2. i read part of the blog you mentioned and almost replied. but decided not to waste my time or memories of dear lilly...