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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Sunday, August 12, 2012

Angel wishes

Recently there was an online auction to benefit Now I Lay Me Down To Sleep, the free photography service to families of babies that are stillborn or not expected to live long.  (We received this service with Lilly and were greatly blessed by it.)  The auction was put on by the parents of Elizabeth, a little baby girl that lived for 24 days with Trisomy 13.

The auction was a great cause and I found myself drawn to one of the items up for bid.  It was a little bag with angel wings.  There was just something about it that!  I placed a bid, but didn't win.  So I contacted Elizabeth's mama and asked where the bag came from and told her how sweet I thought it was.  She responded it was donated by the support group Living With Trisomy 13.  Like Elizabeth's mama, I recognized the mama that ran this group from the trisomy support group on Facebook.  Her daughter Isabel has Trisomy 13 and is still living!  So I asked her.  She sweetly responded that I would receive a bag for free in the mail, from the woman that was making them.

I was so touched!  I continue to be amazed at the kindness and generosity of people I have met in the Trisomy world.  Lilly blessings continue.  :)

Just the other day, I received the sweetest mini angel wishes bag with a note:  "This angel wish bag was made with love and filled with prayers.  God bless!"  There was also an enclosed letter, which was so touching, it had to have been originally written by a mother that had lost a child:

Dear Mommy,
I know you are feeling very sad, and miss me more than words can say, but please know Mommy, that I will always be by your side, keeping silent watch over you each and every day.
Thank you for all the precious moments that you spent by my side.  I shall cherish forever your tender touches, and the way you lovingly looked at me with immense admiration and pride.
I will always remember your beautiful smile, your silky, soft hair, and the smell of your skin as you caressed me, held me safely, and took such great care of me.
I know it may for you to understand why I had to go, but God had different plans for us.  I met Jesus and everything they say about him is true!  He loves me Mommy, and you too!
He will help you through this; please trust in your faith that we will be together again in our Heavenly kingdom one day.
Any time you think of me, or speak my name into the wind, I shall be there with you, I will reside forever inside your heart.
At night, I will kiss you gently on your cheek, as you drift peacefully off to sleep.
I met new friends and pointed you out.  "Look, there's my Mommy!  Isn't she beautiful!"  They agreed.  I am such a lucky girl to have you for a Mommy.  I chose you well.  I knew before I was born that you'd be the most amazing Mommy ever!
Thank you for everything.  I love you always, and forever.

I miss you my Lilly, my beautiful angel girl!


  1. It is so wonderful to see how the Lord can use people even in the midst of pain. You are a great resource for so many people and an encouragement to all moms who read your blog. I need to remember this beautiful expression of love for the women I know who are hurting. Thank you for continuing to write and inspire. We are blessed.