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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Tuesday, August 28, 2012

Beautiful symbolic butterflies ...

This heart is a bit hard to read, but it says "Trisomy Families touch the hearts of everyone around them forever."  I thought that was beautiful and so true!  I continue to be amazed at the number of people who tell us how much Lilly, and our family, has touched their lives.  I love know that Lilly's life was so far reaching and had so much meaning.  And I can see that in the lives of other Trisomy children who's families I have gotten to know.

I got an email from D.P. who keeps an eye on Lilly's grave when she can.  She said that in driving by the cemetery the day after a storm, she noticed Lilly's wreath had blown over and so she stopped and put it back in place.  I was so thankful!  Because if it was left on the ground, the wreath probably would have blown away and gotten thrown out.  D. shared that when she stopped at Lilly's grave, there were two butterflies fluttering over Lilly and Wendi's stones.  (Wendi is my husband's sister, who died in her teens, and Lilly is buried right next to her.)  The butterflies continued to circle until D. fixed the wreath, then fluttered off together.  I love it!  My children often say that Lilly lives in a mansion in heaven with Wendi and Pop.  (Pop is my father-in-law.)  T. said that the smaller butterfly D. described must have been Lilly, and the larger, Wendi.  Thank you D.!  (I've never even met this woman, but so appreciate her kindness.)

Lilly had the first Trisomy 18 angel story posted on the Trisomy 13 support group - Living With Trisomy 13.  I love the butterfly frames added around Lilly's pictures on the webpage.  You can read her story at: .  I've used the same story for Lilly before.  I just haven't been able to write another summary like that.  Thank you Vanessa for posting Lilly's story!

Speaking of butterflies, Lilly is on a waiting list with Triplet Butterfly Wings  for a special butterfly release and photo in her honor.  This mom, who lost triplets, raises butterflies and then releases them in her special garden (a garden in memory of her own babies).  Each butterfly is in honor of an angel baby and she photographs them as they are released.  Look at her blog and see how beautiful the pictures are.  I recently noticed that this mom makes and donates burial wraps and hats to hospitals. 

My own Lilly Memorial Project, in honor of angel babies, is slowly coming together.  I got another preemie boy outfit off Ebay the other day:

"Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God." - 2 Corinthians 1:3-4

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