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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, May 16, 2013

Rainbow onesie for a rainbow baby

Solomon is wearing his new rainbow baby onesie that I bought from Angel's with Wings (on Facebook).  (Thanks to my cousin D.L. for telling me about them!)  The onesies come in different sizes and you can get different colored lettering.  (Note they can take 4-6 weeks for delivery.)  Solomon's onesie says:

 After every storm there is a rainbow of hope
(picture is a rainbow made of different colored hearts)

The other day, I overheard Hunter talking to Frank about Solomon.  Hunter said "It's so nice to have a boy baby that is staying alive."  Then he added, like he was really impressed, "And he's only been to the hospital once!"  Frank pointed out that Solomon was actually born at the birthing center, like Hunter was, instead of the hospital.  But Hunter corrected him and said that Solomon had been to a hospital - when we dropped off our Lilly donation.

Bella Santorum (picture at right) reached another major milestone a few days ago - she turned FIVE years old.  Bella, daughter of Rick (former senator and presidential candidate), has full Trisomy 18, like our Lilly did.  Rick mentioned Bella in a recent article called "Saints Among Us" he wrote for World Net Daily.   Rick has some information on Trisomy 18 on his blog at Bella's Corner

"For He will give His angels charge of you, to guard you in all your ways. On their hands they will bear you up, lest you dash your foot against a stone." - Psalm 91:11-12

Remembering my Lilly, who became an angel 17 months ago yesterday:

1 comment:

  1. So amazing about Bella. i would love to meet her!