This is the 1st post in a 17 post series summarizing each of Lilly's 17 months of life. To learn more details about Lilly's daily life, just click the appropriate month and year of my Blog Archive on the right side.
July 4, 2010 - August 3, 2010
Four days after leaving the hospital, a photographer from Now I Lay Me Down to Sleep came to our house to take free remembrance photos of Lilly.
On Lilly's first Saturday, she suddenly began having "seizures." (I'm calling them seizures but we never found out for sure what they were.) She would suddenly stop breathing and turn blue. Then she would gasp and begin to breath again. Some were so bad Frank had to breathe into her nose and mouth to get her to start breathing again. I remember holding her and crying and saying "Please Lilly, don't leave me. I need you!" God spared her. After a number of these "episodes" that afternoon, they suddenly stopped and Lilly never had one again! When she seemed back to normal, I quickly took some pictures of her:
Since we didn't know if the "seizures" would start again - or what exactly might happen - we got set up with hospice. But as the hospice nurses came day after day to check on Lilly, I started to get annoyed. It seemed to me they were patiently waiting for her to die. (That's their job anyway.) But Lilly was growing more and more alert every day! She continued to drink breastmilk from her bottle and slept pretty well. We bathed her, went on walks with her, and did "normal" baby things with her.
We all adored her!
"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11