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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Friday, July 4, 2014

Happy 4th Birthday, Lilly!



Happy, happy birthday Lilly!  You were born into this world 4 years ago today.  We miss you so much, our sweet Little Firecracker!







Lilly is featured on SOFT's website homepage today.  Click http://trisomy.org/.  Here is a screenshot of the SOFT page Tabby took for me:

Go directly to Lilly's story on SOFT's website, in the family stories section here:  http://trisomy.org/our-story/lilly-hollowell/http://trisomy.org/our-story/lilly-hollowell/

Can't wait to see you again one day, Lilly.

Wednesday, July 2, 2014

Reminder about my Lilly-colored pillowcases giveaway!

Here it is.  July 3.  Tomorrow our Lilly girl would be celebrating her 4th birthday if she were still with us.  But she's not and I'm thankful she'll have a perfect day anyway.  We miss her so much but know every day that passes on earth is a day closer until we see her again.

Still, it sure would be awesome to celebrate her birthday with her!  It's fun to imagine what she would look like now.

You have until Saturday to let me know if you'd like to be entered into my drawing for two Lilly-colored pillowcases:

red/white/blue stripes, navy blue, red with tiny white polka dots
My original post with more details is here.  These pillowcases were handmade by Cassie.  She has other pillowcases for sale (and other items), and takes special requests.  Check out her blog here: http://kwantclancrafts.blogspot.com/

I have two more of the pillowcases for me to keep.  I have visions in my head of making a navy blue with white polka dots duvet cover to match them.  Maybe that will happen.  One day ...

Solomon helped me decorate for Lilly's birthday yesterday.  We hung bunting on our upstairs porch rails.  And put out Lilly's birthday presents on the mantel.  (The girl, 2 bears, and doll.)


We also decorated her special tree that we leave up year around.


Back to the contest, just leave a comment or e-mail me if you'd like to be entered!

Blooms in our yard and "Bloom" - A useful new homeschool course

There have been a lot of things blooming and growing around here this summer - in spite of the lack of rain.  Thus far, our garden has produced several varieties of greens for salads and potatoes and green beans.  Picking the green beans has been keeping Frank, Hunter, and Tabby busy lately.



Solomon loves to help snap the beans.  He's found they snap best when he wears his serious, focused look:


A few days ago, this lily bloomed - I think it is called "little business daylily":



Things that bloom and grow are exciting.  I love watching for buds to open.  Our crepe myrtle trees are getting tiny buds on them.  I love the explosion of flowers with they finally open.

People can bloom too, can't they?  After proper nourishment and enrichment, we can grow and change for the better.

"Those who are planted in the house of the LORD, Shall flourish in the courts of our God." - Psalm 92:13

Last year I shared about a homeschool book I had read that was very helpful to me:  Plan to be Flexible by Alicia Kazsuk.  (You can read my review here.)  Since then, I have gotten to know Alicia some online.  Earlier this year, she asked me to be one of a very small group to help test out a new homeschool video course she has created.  I'm so thankful I didn't pass up the opportunity!

The course I took is:  "Bloom: A Journey to Joy (and Sanity) for Homeschool Moms."  It is a seven part course.  Each part is approximately 20 minutes long and is a pre-recorded training video done "power point" style.  I've never take a class like that and found the style very helpful as it was easy to pause and helpful to see Alicia's notes on the highlights as she talked.

Some of my echinecea (coneflower) in bloom
My very favorite part of the course were the seven corresponding "At-Home Discovery Packets."   There was a packet for each online class which consists of key concepts, a blank page for webinar notes, thoughts to consider, various worksheets, and a related story from Alicia's life.  I can not tell you how much the exercises and worksheets in particular helped me.  I often spend my days in a rush just dealing with whatever is happening currently.  But these worksheets helped me really focus and mentally work through things.  Just writing stuff out can help us see things more clearly!  Some of the worksheets were even helpful for other people in my family.  I liked how on the "exercise" pages, Alicia listed out steps on the topic and gave examples.  Then there would be a space for working through it on our own.

For example, an exercise called "Encouraging Inspiration Over Comparison" gives 5 steps to implementing new thoughts or ideas into our homeschooling.  Then there is a chart with an example of what that looks like.  Then there is a space for the person taking the course to try it.  The methodology was just so useful to force me to stop and clearly think through things.

All my packets are now in a binder and live next to my homeschool planner.  I know I'll be referring back to them again and again.

lilies in Lilly's memorial garden
Here is a listing of the seven parts in the Bloom course:

1) The big fat lies (and the truths that set us free)
2) Firm foundations: building rhythm around daily pillars
3) Steps to simple (and rest-filled) days
4) Homeschooling joy-stealers: Part 1: The perfectionist vice
5) Homeschooling joy stealers: Part 2: The comparison leech
6) Homeschooling joy-stealers: Part 3: The anger monster
7) The path to perennial (not annual) joy

Alicia has a lot more details on her last blogpost, which you can read here:  http://www.thevintagecreative.com/2014/06/30/introducing-bloom-and-why-im-praying-this-course-will-rock-your-homeschooling-world/   Note that the course will be officially released later this month.  And the cost is just under $100.  Check out Alicia's post - the "Lisa" in it is me.  :)  I will post when the course is actually released so you can sign up if interested.  

"The righteous shall flourish like a palm tree, He shall grow like a cedar in Lebanon." - Psalm 92:12

Here's one more picture of Lilly's garden.  Solomon likes sitting by it.  There are some new blooms that will open soon.  They are called "eyeliner lilies" and are supposed to be white with a black outline around the petals.  I planted them this spring and am looking forward to seeing what they look like.



"I planted, Apollos watered, but God gave the increase.  So then neither he who plants is anything, nor he who waters, but God who gives the increase." - 1 Corinthians 3:6-7

Monday, June 30, 2014

The milk in that "udderly" natural goat milk soap ... And SOAP SPECIAL for the week

See end of this post for a special price on goat milk soap!  This week only!

If you've read this blog for awhile, you know that "The Goat Chick" is Tabby's nickname.  (A play on the goats and chickens she cares for.)  She blogs sporadically at The Goat Chick and has an Etsy shop with the same name.

The best seller in her business has been The Goat Chick's "Udderly" Natural Goat's Milk Soap.  This awesome totally good for your skin soap that we make starts out with fresh goat milk - supplied by our own goats.  After we have that milk, we add in these other fine ingredients:  coconut oil, olive oil, palm kernel oil, rice bran oil, shea butter, palm oil, castor oil, and eucalyptus and spearmint essential oils.

I thought it would be fun to post some pictures of Tabby milking the goats, so Saturday I followed her outside in the morning.  The lighting wasn't great and my camera batteries were almost dead, so I couldn't turn on the flash, but you can get the idea from these pictures.

When we walked into the goat pen, our three goats were so very happy to see their Goat Chick!  They knew it was breakfast time.  Goats love to eat.  Though in spite of what the cartoons lead you to believe, they do NOT eat tin cans.  Nor a number of other things.  But amazingly, they DO like to eat poison ivy!  Talk about a natural, organic way to clear poison ivy out of your yard.  :)

Tabby starts out by getting Nutmeg's breakfast and putting her in a stall to eat, so none of the other goat's steal her food.  (Nutmeg is obviously not pregnant, much to our disappointment.)


The guinea hens home is near Nutmeg's stall, so I snapped this picture of them after taking hers.  They are getting bigger but are still quiet skittish.  They are just a much more wild bird that the chickens, so they aren't thrilled about having us close to them.


Tabby next feeds Big Christa.  She puts the bowl of food in a special place on the milking stool that Frank built, and Christa jumps up to eat.  Tabby puts a bar down over Christa's neck, so that she can't jump down, and then sits down and starts milking.




Tabby's got strong hands and can really get that milk out fast and squirting into the bucket.  It makes a neat, rhythmic sound.

Christa finished her food before Tabby was done milking her and so she let Tabby know by stomping her hoof.  Tabby gave her more food and then finished milking her.  I thought that was a funny signal.  And Tabby was quick - the second Christa's leg started going up, Tabby moved the bucket to make sure that hoof didn't come back down IN the bucket.

Next it was Pippi's turn.  You can really see foam at the top of the milk by this point.



By the end, we have enough milk to fill up 3 quart jars.  We drink it, use it for making yogurt, bake with it, and still have more than we can use!  I want to try making some ice cream with it soon.  And I've heard mozzarella cheese is easy to make with it.

And of course it's the first ingredient in our goat milk soap!

Once we make the soap, it cures for at least 5 weeks, Tabby then wraps each bar with her signature labels:




Finally - a finished product that is really GOOD for your skin!


FOR THIS WEEK ONLY - I AM HAVING A SOAP SPECIAL!  A bar normally costs $4.50.  But in honor of Lilly's birthday - she would have been 4 years old - soap will only cost $4.00 a bar!  You must contact ME directly for this discount. 

Friday, June 27, 2014

In honor of Lilly's 4th birthday: a "Lilly-colored" pillowcase GIVEAWAY!

One week from today it will be Lilly's 4th birthday.  Oh yeah, and Independence Day (Fourth of July) too.  :)

I thought it would be fun to have a little giveaway in Lilly's honor.  What I will be giving away are TWO Lilly-colored pillowcases.  These pillowcases are made by Cassie, who makes and sells things in honor of her little sister, Hannah, that is in heaven playing with Lilly.  ;)

I bought the little patriotic rag doll (in the photo next to LillyBear) for Lilly's birthday present this year.  I like to add one thing to her July 4 themed collection each year.

I love Cassie's pillowcase design.  I chose the fabric and she had four pillowcases whipped up for me within days.  (I am keeping two and giving away two.) She is an excellent seamstress.  Check out her blog  at http://kwantclancrafts.blogspot.com/ with items for sale - it includes a number of cute pillowcases.  She takes special orders too.  :)


It's not super clear in the above photo, but the red fabric on the right side has tiny white polka dots.  I LOVE polka dots.  :)  Examples:



Just contact me if you'd like to enter!  Leave a comment, e-mail me at my main e-mail address or at LittleFirecrackerLilly   ( a t) g mail. c om (remove spaces).  I will pick a winner randomly, the day after Lilly's birthday.  

So be sure to enter and then watch for a winner to be announced Saturday, July 5th.  I'm excited to see who will win!



Thank you again to Cassie for helping make this giveaway possible. Your sewing is beautiful.  Just like you.  :)

". . . And remember the words of the Lord Jesus, that He said, 'It is more blessed to give than to receive.'" - Acts 20:35

Monday, June 23, 2014

Learn to Embroidery: Check!

For a couple years now, I have wanted to learn to embroidery.  I can finally check that off my To Do list as of yesterday when I completed my first sampler and feel I have a good understanding of a number of stitches.  I started it last fall and worked on a  bit here and there.


I plan to frame it.  I bought it as a kit from Clementine Pattern Co. on Etsy.  This shop sells patterns created by a mother and her two daughters.  I didn't realize it until recently, but one of the daughters is Breezy Brookshire, the young woman that illustrated Angie Smith's delightful book Audrey Bunny.  (You may recall I gave away a copy of this book last March for Trisomy 18 day.)  You will see in the Etsy shop you can buy complete kits or just the pattern for their designs.

I was drawn to this beginner's "Sing to the Lord!" kit because I was a beginner, I liked the "sampler style" (learning different stitches), and the bird is so cute!  I also liked the "Sing to the Lord!" part which is actually a bit ironic for me because I hate my voice and don't really like to sing.

I suppose for me that is vanity and pride all rolled up "nicely" together.  Sometimes I think that if I had a good voice then I would like to sing so I'd sing a lot more.  The Bible is full of verses about singing, such as:

"Praise the Lord! For it is good to sing praises to our God; For it is pleasant, and praise is beautiful." - Psalm 147:1

I know, I know.  I've heard all the statements like "God made your voice, you should be grateful and accept it."  And "God doesn't care what you sound like, it is what is in your heart."  "If you would practice singing more, then you would really learn how to."  Etc. etc.

That's why I said for me, singing is often a struggle of vanity and pride.  Maybe a few more sins lumped in there too.

I remember in elementary school, in 4th grade, we each had to get up and sing solo with a microphone in front of the class.  The teacher played "Jeremiah Was a Bullfrog" (!) on the piano as I sang along. I remember not being nervous or anything, just singing along.  (Kind of funny now that I think about it as I was a shy child and didn't go around singing.  We weren't one of those "singing" families.)  When I sat down after, a boy turned around and said to me "You sounded funny."

Ouch.  The next year when I had to get up to sing, I sang so softly that the teacher stopped playing piano normally and only played the melody softly with her right hand.  I felt like throwing up.  (Almost the same sensation I'd get every February when we had to do square dancing.  Square dancing in elementary school?  That was crazy!  Everybody knew boys had cooties!)

Then when Tabby was a baby, I was singing to her and a person that I shall not name said they had to leave the room because they couldn't stand to hear my singing.  Thankfully that person is no longer in my life.  (I mean really, even when you think someone's singing is bad, why in the world would you feel the need to tell them?)

Tabby made me feel better when she was a toddler when she said "I love when you sing to me, Mama."

Thankfully little children are much more forgiving.  Hunter still wants me to sing to him when I tuck him in at night.  And I sing to Solomon at times.  Lilly found singing very calming when she was upset or hurting.  I even sang to her "her songs" when I was holding her after she died, while we were sitting in the ambulance.

Still though, I sure wish I liked my voice.



Back to embroidery, Tabby decided she wanted to learn too.  And true to Tabby's quick nature, she had a whole project finished within a week or two, using whatever stitches she felt like.  She took several designs from an embroidery book I have called Doodle Stitching: The Motif  Collection, and put them into one.  The result:  chickens, chicks, and a tree showing all 4 seasons.  Peep!


I plan to frame her work too.  It's perfect decor for our old farmhouse.  :)

I have liked embroidery since I was little.  My mom made me a pink heart shaped pillow with embroideried figures all over it.  I always liked looking at it.  Tabby liked using it.  And Hunter even likes it now.  [I had planned to take a picture and post it here but wasn't able to find it.  So just imagine one!]

My ex-mother-in-law gave me this beautiful embroidered piece that she had sewn, when Tabby was born.  I still love looking at it:


Yesterday as I finished my project, Hunter was looking for something to do and asked if he could try sewing something.  He cranked out a piece that says "SAM" (backwards "S") and has a dog leash on it.  (Sam is his stuffed dog that has been his loyal friend for 4.5 years now.)



Seeing Hunter sewing reminded me of something I heard on the radio back in the 1990s.  Apparently, in schools in San Francisco, feminists pushed to have required sewing classes for boys.  Well the boys dutifully sewed, but what kind of pictures do you think they sewed?  Mainly guns and knives.  :)

I'm not sure what my next embroidery project will be.  I know I enjoy working with my hands so I will do something.  Plus I have this wonderful old box full of embroidery thread from my mother-in-law, just waiting to be used.




"Is anyone among you suffering?  Let him pray.  Is anyone cheerful?  Let him sing psalms." - James 5:13

Friday, June 20, 2014

Trisomy 18 news article and a gravestone fundraiser

The lilies in Lilly's garden are looking spectacular!  I love the burst of color I see each time I look out the window:

Solomon



Some of the lilies are so tall that they are bending under the weight of the flowers.  But they're all still beautiful.

Faith is a 5 year old girl with Trisomy 18 and Monosomy 21.  I read on her blog this week, that her dad, Brad Smith, published an article on LifeNews.com entitled "We Thought Doctors Were Helping Our Daughter With Trisomy 18, But They Were Slowly Killing Her."  Brad wrote about how when Faith was younger, he had a chance to ask Rick Santorum for advice about children with Trisomy 18.  (Rick's own daughter with Trisomy 18, Bella, recently turned 6.)  What Rick shared completely changed the way the Smith family cared for Faith.  In that journey they also learned about something scary called "Slow Code."  What is "Slow Code?"  Brad writes "it is not care, but lethal neglect or intentional death."  Click here to read Brad's entire article.  This information is SO important if you have a child that doctors consider "incompatible with life."  Here is a picture of Faith and her family with Rick Santorum:

The Smith family and Rick Santorum
Last night, I read about the need of a family of a Trisomy 18 angel.  Nalah lived 26 months with full Trisomy 18.  She died December 2010.  To date, her family still has not been able to afford a gravestone for Nalah.  They are now fundraising for one, hoping to have it before what would have been Nalah's 6th birthday.  You can read more about Nalah and donate (any amount) here:  http://www.gofundme.com/nalahsmith
Here is a picture of Nalah:

Nalah
Here's another sweet picture of Nalah that I found on her mom's Facebook page:

Nalah and her doll
This request really touched my heart.  I love that Lilly's gravesite is marked.  I designed her gravestone before she was even born.  How blessed we were that she lived 17 months before we ever had to request that stone.  I can't believe Lilly will have her 4th birthday very soon.  We'll be visiting her grave to take her a little gift and send some balloons up to her.  :(  I've suddenly been feeling like crying whenever I think about it, the past few days.  I guess it's because it's a significant anniversary. People say the anniversaries are always the hardest.  It's true.  For me it's Lilly's July 4th birthday and December 15th angel day.

Here is a picture of Lilly's grave I took last March:


I look forward to going back and seeing the green grass and changing out her spring tree for a 4th of July decoration.