caption - title

The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Friday, March 2, 2012

March is Trisomy Awareness Month

March is Trisomy awareness month. It is for awareness/education about trisomies. Here is an article describing it. Blue is the ribbon color for Trisomy 18. (Yay! My favorite color!)

From what I've read, the majority of babies that are diagnosed with a Trisomy are aborted. I am still astounded that 90% of supposed Down Syndrome babies are aborted. The above article mentions that, plus I was reminded of that by Faith's dad in a recent comment. And speaking of Faith (she is 3 years old and has Trisomy 18) she is back in the hospital with her bleeding problem again. Please pray the doctors would finally figure out how to treat her!

Here are two pictures of a happy smiling Lilly, that T. took back in August of last year. This is one Trisomy baby that was sure happy to be alive! I miss that smiling face and cute, chubby, kissable cheeks. And yes it still hurts that she's not here with us anymore. But we remain grateful for every second we had with her. 529 days of holding Lilly!

I received the very last picture in a forward recently. It is what a baby of a pregnant mom that is 12 weeks along looks like. I'm at 12 weeks today and my kids and I find the picture fascinating!

"Behold, children are a heritage from the Lord, The fruit of the womb is a reward." - Psalm 127:3

Many people have been asking if I am going to have an ultrasound and if so when and do we want to know the sex of the baby. Yes to both questions. The ultrasound will be in April - maybe the 2nd week. And yes, I'd like to know if it's a boy or girl. That way I know what kind of clothes to unpack to have ready.

Finally, here is a quote I read recently that I liked:

"Parents are similar to a candle. God sends a child with Trisomy to be the flame that ignites the parent for a purpose!"


  1. Cute Lilly! She knew what to do when she saw a camera!

  2. Your life already had great purpose but just look at what the Lord has been doing. You are an extraordinary mother and Lilly is still showing people that her life had incredible impact on others. So glad you continue to write and inspire.

    Love in Christ,


  3. what an adorable little handful. amazing. xxoo

  4. Using that Trisomy Awareness logo for my Facebook profile pic for a while. :]

    The Lilly pics are so adorable!

  5. she's so adorable! i hope she has the best life she can :)

  6. This makes me so sad as she is such a cute young girl.