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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Friday, October 19, 2012

The red diaper cover

I'm one of those "weird" people that really enjoys using cloth diapers for my children.  (No I'm not out to save the environment.  I just think it's probably healthier and it does save a lot of money.)  I loved this red diaper cover on Lilly - it was "firecracker red" to me.  (picture December 2011)  Hi Lilly!

I've been using Hunter's old cloth diapers on Solomon, just as I did for Lilly.  The red diaper cover was all Lilly's though.  For the past few days I kept reaching for it, but for some reason just wasn't ready to put it on Solomon.  Finally however I did. 

Today when Tabby changed his diaper, she used the red cover.  But she didn't stop there - she decided on a quick photo shoot too.  Solomon is wearing a hat crocheted by the same kind woman that made LillyBear for us.  (The mama of a Trisomy angel.)  Solomon isn't as chunky as his big sister Lilly yet:

Solomon says he may not be as big as Lilly was, when she became an angel, but he's strong!  Since birth he has been able to lift his head and hold it up awhile and to stand strong on his legs when we support his upper body.  I call him "baby Sampson." 

Tabby was so surprised that a baby could do that.  She said "He doesn't have low muscle tone like Lilly did."  No he doesn't.  When she said that I also thought I sure didn't know anything about "low muscle tone" at her age.  Or maybe not really even until we had Lilly.  We learned so many things from her.

Today after I tossed an empty box I had unpacked out the door as was walking back to the room I was working on, I suddenly started crying.  What in the world?  Then I realized Tabby was playing one of the songs we sung at Lilly's funeral on the piano.  ("As the Hart About to Falter" which is based on Psalm 42)  Apparently my subconscious realized it before my conscious part did.  OK ... so I guess I wasn't crazy after all.

Here is Psalm 42 ("hart" is an old word for "deer"):

Yearning for God in the Midst of Distresses

To the Chief Musician. A Contemplation of the sons of Korah.

42 As the deer pants for the water brooks,
So pants my soul for You, O God.
My soul thirsts for God, for the living God.
When shall I come and appear before God?
My tears have been my food day and night,
While they continually say to me,
“Where is your God?”
When I remember these things,
I pour out my soul within me.
For I used to go with the multitude;
I went with them to the house of God,
With the voice of joy and praise,
With a multitude that kept a pilgrim feast.
Why are you cast down, O my soul?
And why are you disquieted within me?
Hope in God, for I shall yet praise Him
For the help of His countenance.
O my God, my soul is cast down within me;
Therefore I will remember You from the land of the Jordan,
And from the heights of Hermon,
From the Hill Mizar.
Deep calls unto deep at the noise of Your waterfalls;
All Your waves and billows have gone over me.
The Lord will command His lovingkindness in the daytime,
And in the night His song shall be with me—
A prayer to the God of my life.
I will say to God my Rock,
“Why have You forgotten me?
Why do I go mourning because of the oppression of the enemy?”
10 As with a breaking of my bones,
My enemies reproach me,
While they say to me all day long,
“Where is your God?”
11 Why are you cast down, O my soul?
And why are you disquieted within me?
Hope in God;
For I shall yet praise Him,
The help of my countenance and my God.


  1. Oh such sweet pictures of both of your beautiful children. What a lovely song I will have to Google it and listen. Glad to see baby Solomon is doing so well.

  2. beautiful picture of lilly.

    working on a new chapter of "Lilly Bug Gets Her Wings."