I am delighted that little Mary-Margaret is one week old today! She was born via a scheduled c-section at 37.5 weeks gestation. She weighed 3 lbs. 6 oz. Miss Mary-Margaret needed the CPAP to help with breathing for a few hours after birth, but then came off that and has been breathing well on her own ever since. She has an NG tube for feeding.
In spite of doctors continuing their typical Trisomy 18 warning -she'll die within a few days - she is doing just fine and is making plans to leave the NICU and go home very soon.
Please pray with me that little Mary-Margaret lives for a long time!
You'll noticed that Mary-Margaret has her hands lightly clenched in these pictures, typical of a baby with Trisomy 18. But I have seen pictures of Mary-Margaret where she has her hands opened normally.
I remember Lilly's hands were purplish when she was born because she clenched hers shut so hard. They remained super tight for quite some time. My second blogpost I wrote showed how we stuffed cottonballs in her hands to try and help her open them a little.
|Lilly clenching cottonballs|
|Lilly modeling her "boxing gloves" the day she got them|
|Solomon matching farm animal cards|
“(13) For You formed my inward parts;
You covered me in my mother’s womb.
(14) I will praise You, for I am fearfully and wonderfully made;
Marvelous are Your works,
And that my soul knows very well.
(15) My frame was not hidden from You,
When I was made in secret,
And skillfully wrought in the lowest parts of the earth.
(16) Your eyes saw my substance, being yet unformed.
And in Your book they all were written,
The days fashioned for me,
When as yet there were none of them.” - Psalm 139:13-16