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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Monday, August 15, 2011

Lilly learns to laugh!

Last Friday, Lilly was in her bouncy seat on our kitchen table as usual, while we ate dinner. She suddenly started making a noise that sounded a bit like a fuss. But her whole face was lit up and she had the biggest smile. She kept doing it and smiling the whole time. We wondered if she was laughing. And then on Sunday she did it again. And again today! So yay!!!! Lilly has finally learned to laugh. What a blessing to us all. :)

"A joyful heart is good medicine . . . ." - Proverbs 17:22

I just got an appointment for Lilly's heart catherization. She is scheduled for next week, on Thursday morning. Please be praying that she will handle the anesthesia just fine.

Also last Friday, Lilly's occupational therapist brought some little splints for her hands. They are to help her open up her hands. She is doing pretty well with her right hand on her own, but her left hand needs help. And on both hands she needs to learn to not clench in her thumbs so tight. Lilly is wearing the gloves overnight.

Here is Lilly modeling the splints the first day she got them:



An up close shot - you can see her thumb sticking out a little - she has plenty of growing room:


Sleeping beauty:




3 comments:

  1. At dinnertime, our family all gave praise to the Lord for this wonderful gift! I told A and I about this and they were delighted to hear that Lilly had laughed! Thanking the Lord for your powerful witness!

    The W-H's

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  2. That is so wonderful! It looks like she is wearing boxing gloves in the pictures...fits with her fighter reputation, lol. You'll have to start calling her Tiger Lilly *smile*

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  3. Ha, the first picture looks like Lilly's ready to beat someone up - fly like a butterfly, sting like a bee! She looks adorable in the last pic. :)

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