13 Months Old! And Jesus in the room

[picture - I never get tired of looking at sleeping children!]

Happy 13 month birthday Lilly! And happy birthday to Lilly's friend Giuliana who made it to one year old today! Another miracle baby!

Yesterday Lilly and I were gone from home half the day for appointments with her audiologist and ear-nose-throat doctor.

The audiologist went over the results of Lilly's hearing test (done in May) in more detail than she had previously done on the phone. She showed me on a chart what types of sounds Lilly most likely heard. Lilly hears better in her right ear and in that ear should hear most of what we say. Though there are some letters in words that she may be missing. But not in her left ear. That ear needs louder sounds like dogs barking, vacuums, or babies crying. She did a few hearing tests on Lilly while we were there. Lilly cried when she looked into her ears, but did find otherwise. The audiologist did say that for Lilly much of the transmission gets lost in her ear canals because they are so incredibly tiny. But, as Lilly grows, then hopefully her ear canals will grow, and then she will hear better.

We talked about hearing aids and I said that we weren't going to pursue it now because Lilly did respond to our voices. Probably a good thing as she noted that the tops of Lilly's ears are so thin and soft and that it would be tricky to get hearing aids to stay in them. (They'd need tape.) (I knew her ears were really floppy but hadn't considered that before. But I know if I put sunglasses on Lilly and they don't have a strap to keep them up and on, the sides of the glasses push her ears down.)

After that appointment we had a long wait to see the ENT. (We should have only waited about 25 minutes, but they were running ONE HOUR behind. Sigh.) Nothing really to tell of that appointment - the two doctors she saw asked a lot about Lilly's breathing. They said that once she had her heart surgery, the pulmonologist would probably start weaning Lilly off night time oxygen. Yay!!!!!!!!

We had an interesting experience while waiting in between appointments. We were in a little waiting room were a steady stream of people were coming in and being called out. At one point a woman came in with her baby and mother. They smiled and asked how old Lilly was. When I said "one year" they both looked quite startled, especially when I said "no Lilly was not a preemie but was born 2.5 weeks late." The woman's baby was 10 months and even though not chunky like Lilly, looked so big next to Lilly. When I explained about the Trisomy 18 and that Lilly was now one and that made her one of only 10 percent that survive that long, the mother loudly exclaimed, "I KNEW I felt Jesus in this room when we walked in!!!" I smiled and told her we gave God the glory for Lilly being here with us. Then we all smiled and they amened. Praise the Lord! :)

"However, as it is written: "No eye has seen, no ear has heard, no mind has conceived what God has prepared for those who love him"-- 1 Corinthians 2:9