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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Monday, January 23, 2012

Remembering my Lilly Sunshine

This picture (Nov. 2011) is blurry but it makes me smile. This is from my view in our SUV when I would lean over the back of my (passenger) seat to check on Lilly. She would always look up at me and just grin. She thought it was really funny for us to look at each other upside down.

Yesterday morning my son came and got in my lap. He had the two stuffed animals of Lilly's that he inherited. He was petting them and saying "Awwww ... Lilly's friends ... I'm taking good care of them." He gave me a big hug and wanted me to sing him a Lilly song.

You are my sunshine,
My Lilly sunshine,
You make me happy - when skies are grey,
You'll never know dear - how much I love you,
Please don't take my Lilly away.

It didn't seem right singing this song to him. I kept thinking Lilly had been taken away. I think we need to make up some new songs.

At church yesterday, our service began with this song (the psalm we sing is based on Psalm 40):

I waited for the Lord;
He stooped and heard my cry.
He brought me from the pit, out of the dungeon mire,
my feet set on a rock, my footsteps made secure.
My lips He gave a song, a song to praise our God.

It seemed so fitting with what I had been thinking earlier that morning. I am thankful that people at church aren't afraid to mention Lilly to me. Several did yesterday and it greatly cheered me up.


  1. That is a face that says, "I love my mommy. I love my life." I can totally understand why you like this picture and miss the little girl in it. H sounds like a really special boy, far more profound than most his age. Praying for you all...

  2. May I receive your love each day I am alive.
    May I accept death and struggles as my teachers.
    May I know peace and joy no matter the circumstance.

  3. Adorable; nothing is better than her smile. :-D