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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Wednesday, November 24, 2010

Happy Thanksgiving Eve

Weight check = 6 lbs. 12.5 oz.

In today's pictures, Lilly is wearing a sweater knitted by a co-worker of my husband and her mother. Lilly gets to wear so many things that talented people make. I feel like I need to make her something too! But there's just that pesky lack of time thing right now.

Lilly was so happy her daddy came home from the hospital tonight. She was fussing when he came in but stopped as soon as she heard his voice. He had the kidney stone removed this afternoon. He had a little trouble breathing on his own afterwards. (Lilly knows about that!) Then he wasn't able to urinate so they finally discharged him tonight with a catheter. (ouch!) He's supposed to call the doctor tomorrow. We'll see what happens next.

This has been a strange year for us! We're the types that are rarely sick. But 3 of the 5 of us have been in the hospital this year.


  1. such a PRETTY sweater...and pink becomes Lilly. very nice gift!
    Rest well my has been a tough day for all of you...

  2. pretty pictures!!!! glad bubba is home:)

  3. Happy Thanksgiving to you all - and so much to be Thankful for! So glad Frank had the kidney stone removed and was able to come home last night.We will keep praying for complete healing and comfort for him!
    Love all the precious little outfits friends have made for Lilly -she looks so cute [love the pink on her]. May you all have a more peaceful day today -enjoying the blessings from above!

  4. Oh Lilly! I wish we had matching sweaters!! I just LOVE to match you!!!
    I'm glad we have matching hello kitty
    head bands!!!
    And matching hello kitty knitted hats!!
    Mama says we might be able to have matching Easter dresses!! That would be very fun!!! To bad we don't have
    matching shirts and pants!!!
    mama said she will make us matching skirts!!! We do have red hair bows and
    we have jumpers-but they don't match at all!!!