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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Sunday, November 7, 2010

A smile worth a million bucks ...

It has been hard to catch Lilly smiling and be able to take a picture! Today's picture is the best I've been able to do. She's not smiling a lot but it's enough to bring absolute joy to us. :)

Recently a couple brought a meal to us. Tucked in the bag with the food was this comforting message:

You are not alone - For God is with you.
You are not defenseless - For God is your protector.
You are not inadequate - For God is your sufficiency.
You are not useless -For God has a purpose for your life.
You are not worthless - For God sent His Son to die for you.
You are not without hope - For God has a place prepared for you.
You are not unloved - For God loves you with an everlasting love.
You are not rejected, or abandoned - For God calls you His own.


  1. about the sweetest 'smiley face' I've seen

  2. Wow, what a smile! Uncle Steeeeve noticed how her cheeks are getting chubbier! He says she might be big enough to wrestle with soon. :-)

  3. sweet! and I LOVED my phone call yesterday :)

  4. Lilly looks so FAT! I LOVE IT! Those nice plump cheeks. She looks so much healthier than when we were there! Praise God!

  5. Lilly, last night when you smiled at me whenever I talked you, I LOVED IT!!!
    but I love the way your face lights up
    when I pick you up!!!


  6. she's getting so big!!!! love the smile:)

  7. My my, Silly Lilly! What BIG EYES you have!

    Waiting for a big smile, but I'll take that one!

    love you,

  8. Can there be any more beautiful smile ?!!
    Gordious, she looks so happy and the moment i saw here smile i had to smile too.

  9. I LOVE her smile!!! So happy to hear she is continuing to gain weight! Grow, Lilly, grow!!

  10. She is beautiful! Praying that she continues to gain weight and do well.