Focus ... steady ... bullseye ...

Weight check = not sure. We're "between scales" right now. Should be able to start checking again early next week.

My sister-in-law was over briefly this afternoon and commented on Lilly's eyes and how they shook. (I don't remember if I ever mentioned this on the blog before, so I thought I would explain it.) I call them "bouncing eyes." Sometimes she focuses well and holds her eyes steady. Other times her eyes "bounce" up and down rapidly as she looks at something. (Very small up and down movements.)

I'm trying to help her practice focusing her eyes more by giving her things to look at. For example, I recently printed off several shooting targets for her. It's amazing how much she enjoys studying the targets. She will look intently at them for 30 minutes at a time. This picture shows her looking at her favorite target.

Because of the Trisomy 18, Lilly is developmentally delayed in most things. But Lord willing, she'll get that eye thing worked out before too much longer.


Today I found the most beautiful little red velvety dress for Lilly at the thrift shop. (Laura Ashley brand.) It was only 50 cents! I couldn't believe it as it would easily cost $30 in a regular store. It's too big for her now but it will hopefully fit her next winter. I was just so excited about my bargain and felt elated as I left the thrift shop. I realized later that part of my joy in my purchase is that I bought something for Lilly to use in the future. Ever since I found out she had Trisomy 18, I have been very hesitant to buy anything that she can't use right NOW. But today I realized that I no longer have that constant fear that she's getting ready to die. It is true I have no idea how long she will be with us. But that dark shadow just isn't so oppressing anymore. (Thank you Lord!)

"The Lord God is our light and protector. He gives us grace and glory. No good thing will He withhold from those who do what is right. O Lord Almighty, happy are those who trust in you!" - Psalm 84:11-12