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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Monday, December 27, 2010

The Snow Princess



We had snow yesterday! It was absolutely beautiful as the snow fell from the sky and covered the trees, ground, and everything else!

"The heavens declare the glory of God; the skies proclaim the work of his hands." - Psalm 19:1

Today was sunny and warmer so I bundled up Lilly and took her out in the snow. In spite of what her pictures look like - she was actually awake. It was just too bright for her.

We increased her milk intake on the pump to 20 mLs an hour on Christmas Eve. She seems to be handling it pretty well. Hopefully that will get some more weight on her.
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6 comments:

  1. ChadDecember 27, 2010 at 8:35 PM

    love the snowman:)

    ReplyDelete
  2. odd ballDecember 27, 2010 at 10:09 PM

    Precious 'pink' tarheel
    xxooomom

    ReplyDelete
  3. TabbyDecember 28, 2010 at 9:49 AM

    Oh Lilly!

    I hoped you could come out in the snow!

    Love,
    sister Tabby

    ReplyDelete
  4. NikkiDecember 28, 2010 at 9:55 AM

    love the sucking on the bottom lip in the first picture! nice snowman too. :)

    ReplyDelete
  5. AnjaDecember 28, 2010 at 11:11 AM

    Love the pink snowlady too :-))

    ReplyDelete
  6. Christine TaftDecember 19, 2013 at 12:46 PM

    Sweet pics. Looks like a fun day!

    ReplyDelete

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