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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, October 27, 2011

Reading is fun!



Weight check = 13 lbs. 1 oz.

Height = 26.5 inches


Today Lilly and her brother had check ups with their pediatrician. Both did great. Lilly is growing well, including her head. (Yay - brain is growing!) She's still under the 3rd percentile for everything, but for a Trisomy 18 baby, she's just fine.


After bolus feeding Lilly, I have to keep her still and upright for about 5 minutes, or else whatever I just gave her will come right back up. What seems to be her favorite thing to do during that time is to look at a large board book we have that has a different animal on each page. Each animal has a part that is for touching. For example, the bunny in today's picture has a fuzzy tail. I take Lilly's hand and help her feel the pages. She seems to really focus on all the animals, except the cat. (I guess she prefers dogs to cats like the rest of our family!)

1 comment:

  1. Yay! Go Lilly! Pretty soon you'll be able to join us for family reading time! :-D

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