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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, December 15, 2011

Lilly boxes her friends

Lilly's nose is much better today. We're not having to suction it nearly as much. She is coughing more though. But that's supposed to be a good thing - to help loosen stuff up. Her cough is a little too close to "bark like" for my taste (thinking of croup) but she is very happy today. She enjoyed her physical therapy and worked hard at sitting.

This morning she was really wacking her "friends." That is what we call the animals on the arch on her bouncy seat. A turtle, snail, and frog. Lilly can pull the loop on the frog and play the music. Here's a little video of her bopping everyone one:


6 comments:

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  2. I love it!! It brings back a lot of memories. When she was Lilly's age, Ali loved the toys in her bouncy seat too. She played that music over and over again! :-D

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  3. I am so sorry. She is beautiful. My heart breaks for you all. Blessings, Dana

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  4. She was beautiful!

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