Though I know every day is a gift from God, Lilly is the one that taught me to not to take that lightly. Indeed every breath we draw is a gift.
For Lilly, every day she lived was a milestone.
Of the cases of Trisomy 18 that are diagnosed prenatally a year, more than half end in termination, miscarriage, or stillbirth. Only 600-700 are born alive. Lilly was born alive.
50% of the babies with Trisomy 18 that survived birth die in the first week. Lilly survived those crucial first 7 days.
90% of those babies that survived past one week die before 6 months. Lilly celebrated her sixth month.
That leaves only 5-8% making it to one year old. Fireworks were seen all over the country on Lilly's 1st birthday. ;)
Of those 5-8% of children with Trisomy 18 that made it to their first birthday, 60% make it to 5 years old. Lilly did not.
"LORD, remind me how brief my time on earth will be. Remind me that my days are numbered--how fleeting my life is." - Psalm 39:4