First things first - LillyBear offers Tabby and Hunter her sincere apologies as she forgot to photograph their Lilly things in their rooms yesterday for her post. She will do that soon!
What is Solomon looking intently at?
The cherries on my tablecloth! He is fascinated with them and repeatedly tries to grab them with his clumsy little hands. (By the way, the tablecloth is made of oilcloth. I LOVE it. Definitely kid friendly. It wipes up so easily and when there is a spill, the wetness just sort of puddles rather than going everywhere.)
This past Friday, Solomon began using the potty. Yes the potty! A TINY potty:
I did "infant potty training" with Hunter too. I never did try it with Lilly. There just were too many other things going on with her. (Note: There are some children with Trisomy 18 that do become potty trained! Not many - but it is possible. Lilly's little friend Giuliana is one of those remarkable children.) Anyway, like with Hunter, I noticed that Solomon would wet his diaper within a few minutes of nursing. So instead of just waiting and then changing his diaper, I just plop him on his potty and wait a few seconds or minute or two. When he begins going I make a certain sound. Hopefully he'll begin to learn to associate the sound with going.
From what I've read, many babies will make a sign when they need to go. Honestly I never really noticed one with Hunter. But he did learn to respond to the sound I made. He was not fully potty trained early on though. However, I am glad I had him use the potty, starting at 6 weeks, because we saved an awful lot of diapers. (And wash, since I use cloth diapers too.) And we never had any of the potty training issues that many parents talk about. (Fear, battle of the wills, lack of interest, etc.)
So we'll see how it works out with Solomon.
caption - title
The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14
Sunday, November 25, 2012
Saturday, November 24, 2012
LillyBear's house tour
LillyBear riding up for her house tour with Hunter. (Hunter saved and saved and saved to buy his tractor himself):
I have been surprised at the number of angel moms that have shared that they have received negative comments about how they keep their angel children in their life. For example, criticisms in having a lot of pictures of the angel child in the home, mementos of the angel child, frequently talking about them, family celebrations of the angel child's birthday and death day, etc. Of course the people that are making those types of critical comments, which by the way hurt the moms dreadfully, think they are being helpful. (I suppose. Maybe they're just really uncomfortable.) They seem to think that if those moms will just put all those reminders away then they will heal and life will go back to "normal."
Well that won't ever happen. Those that have not lost children simply don't understand. We don't fault them for that. But I do hope to help my readers understand that they should never make negative comments to those of us that are doing our best to cope with loss. We all do so in our own way and express it differently.
We are now settled into our new home. (It feels funny saying that since the home is 102 years old!) I thought about the above as I decorated. I put "touches of Lilly" in almost every room. Even the coat closet has her little pink fleece jacket she wore during her last few months. Why did I do this? It helps us feel closer to Lilly. We see each other every day. We all like seeing Lilly around the house too. She is an important part of our family and always will be.
Now that I've shared that, LillyBear asked me to post pictures of her showing many of those "touches of Lilly" around our house. :) So here goes!
The outside of our Lilly Colored Farmhouse (it's actually red white and blue!):
Tabby dug up Lilly's birthday tree from our other house and replanted it on the side of our house. (She also has replanted the Easter lilies. We'll replant Lilly's memorial garden this spring:
For some reason, I've always thought it would be neat to have a church pew in our house. My mother-in-law gave us this wonderful red pew. Lilly's special quilt is on the back and her scale is underneath:
Near the pew, I have an old pie safe, also from my mother-in-law. On top are special boxes with cards from friends in the Trisomy world. I used one of the cherub statues at Lilly's viewing and funeral. Hanging on the wall are special Lilly pictures from another Trisomy angel mom and from CarlyMarie:
Here's LillyBear sliding down the banister by Lilly's bunting (it says "In Memory of Lilly):
Our living room has Lilly pictures, of her alone and with us. All the dried flowers are flowers we received when she died:
In the dining room, my special Lilly and Jesus picture is hanging over the piano. I need to get flowers for the red clear and blue bottle vases:
Bookshelf by the piano:
This fireplace is also in our dining room. We've got Lilly's memorial tree on the hearth, and her collage we made for her viewing and funeral on the wall over the mantel. Lilly's crazy sock monkey on one side, the angel doll Tabby made me on the other with the r-w-b candles. (Sock monkey needs something else by him but I haven't decided what yet):
In the kitchen, on the window sill is a jar of Lilly's therapy beans and the flag from her 1st birthday cake on the window:
Lilly's VitaMix is on the counter (I wrote her name one it!):
We have a hallway that is a bit wider than usual. We dubbed it the Lilly Hall. I want to paint the walls the vintage kind of green I like and maybe stencil lily of the valley flowers on a few places. We have Lilly's scripture picture up that my friend K drew for us right after Lilly passed away, and my bag of Lilly's folders and memorial project ideas underneath:
Finally, in our bedroom we have a Lilly corner. I have some Lilly memorabilia on my dresser and Lilly's dresses hanging on the wall. Hanging in the corner over them is a beautiful light that Lilly and I just loved. She loved to stare at it. We just had to bring it with us, even though it's not hooked up to electricity right now:
The pole that held Lilly's feeding pump is now where I hang my diaper bag, Lilly's insulated food bag, and Solomon's sweater:
My husband has Lilly's funeral program and some letters "from" Lilly hanging up:
Under my nightstand is a Lilly colored basket which has the last outfit Lilly ever wore (her sock monkey pjs) and the blankets that were on her bed the last time she ever slept in it. Unwashed of course:
Finally, here is Solomon and LillyBear in Lilly's old bed:
So what do you think - are we crazy people for having so many Lilly things up? No we're not. We're just a family that loves our Lilly and loves to talk about her and remember her.
And yes - I have pictures up of all my other children too. :)
I have been surprised at the number of angel moms that have shared that they have received negative comments about how they keep their angel children in their life. For example, criticisms in having a lot of pictures of the angel child in the home, mementos of the angel child, frequently talking about them, family celebrations of the angel child's birthday and death day, etc. Of course the people that are making those types of critical comments, which by the way hurt the moms dreadfully, think they are being helpful. (I suppose. Maybe they're just really uncomfortable.) They seem to think that if those moms will just put all those reminders away then they will heal and life will go back to "normal."
Well that won't ever happen. Those that have not lost children simply don't understand. We don't fault them for that. But I do hope to help my readers understand that they should never make negative comments to those of us that are doing our best to cope with loss. We all do so in our own way and express it differently.
We are now settled into our new home. (It feels funny saying that since the home is 102 years old!) I thought about the above as I decorated. I put "touches of Lilly" in almost every room. Even the coat closet has her little pink fleece jacket she wore during her last few months. Why did I do this? It helps us feel closer to Lilly. We see each other every day. We all like seeing Lilly around the house too. She is an important part of our family and always will be.
Now that I've shared that, LillyBear asked me to post pictures of her showing many of those "touches of Lilly" around our house. :) So here goes!
The outside of our Lilly Colored Farmhouse (it's actually red white and blue!):
For some reason, I've always thought it would be neat to have a church pew in our house. My mother-in-law gave us this wonderful red pew. Lilly's special quilt is on the back and her scale is underneath:
Near the pew, I have an old pie safe, also from my mother-in-law. On top are special boxes with cards from friends in the Trisomy world. I used one of the cherub statues at Lilly's viewing and funeral. Hanging on the wall are special Lilly pictures from another Trisomy angel mom and from CarlyMarie:
Here's LillyBear sliding down the banister by Lilly's bunting (it says "In Memory of Lilly):
Our living room has Lilly pictures, of her alone and with us. All the dried flowers are flowers we received when she died:
In the dining room, my special Lilly and Jesus picture is hanging over the piano. I need to get flowers for the red clear and blue bottle vases:
Bookshelf by the piano:
This fireplace is also in our dining room. We've got Lilly's memorial tree on the hearth, and her collage we made for her viewing and funeral on the wall over the mantel. Lilly's crazy sock monkey on one side, the angel doll Tabby made me on the other with the r-w-b candles. (Sock monkey needs something else by him but I haven't decided what yet):
In the kitchen, on the window sill is a jar of Lilly's therapy beans and the flag from her 1st birthday cake on the window:
Lilly's VitaMix is on the counter (I wrote her name one it!):
We have a hallway that is a bit wider than usual. We dubbed it the Lilly Hall. I want to paint the walls the vintage kind of green I like and maybe stencil lily of the valley flowers on a few places. We have Lilly's scripture picture up that my friend K drew for us right after Lilly passed away, and my bag of Lilly's folders and memorial project ideas underneath:
Finally, in our bedroom we have a Lilly corner. I have some Lilly memorabilia on my dresser and Lilly's dresses hanging on the wall. Hanging in the corner over them is a beautiful light that Lilly and I just loved. She loved to stare at it. We just had to bring it with us, even though it's not hooked up to electricity right now:
The pole that held Lilly's feeding pump is now where I hang my diaper bag, Lilly's insulated food bag, and Solomon's sweater:
My husband has Lilly's funeral program and some letters "from" Lilly hanging up:
Under my nightstand is a Lilly colored basket which has the last outfit Lilly ever wore (her sock monkey pjs) and the blankets that were on her bed the last time she ever slept in it. Unwashed of course:
Finally, here is Solomon and LillyBear in Lilly's old bed:
So what do you think - are we crazy people for having so many Lilly things up? No we're not. We're just a family that loves our Lilly and loves to talk about her and remember her.
And yes - I have pictures up of all my other children too. :)
Thursday, November 22, 2012
A thankful Thanksgiving
"To speak gratitude is courteous and pleasant, to enact gratitude is generous and noble, but to live gratitude is to touch Heaven." - Johannes A. Gaertner
Lilly in her pumpkin hat last Thanksgiving:
"Would you know who is the greatest saint in the world: It is not he who prays most or fasts most, it is not he who gives most alms or is most eminent for temperance, chastity or justice; but it is he who is always thankful to God, who wills everything that God wills, who receives everything as an instance of God's goodness and has a heart always ready to praise God for it." - Wiilliam Law
Solomon wearing Lilly's pumpkin hat this Thanksgiving:
"If a fellow isn't thankful for what he's got, he isn't likely to be thankful for what he's going to get." - Frank A. Clark
I know this picture portraying the first Thanksgiving is supposed to be historically inaccurate, but I like it anyway:
(Above photo) Lilly's turkey handprints from the two Thanksgivings she was with us. I'm off now to help Solomon make his first turkey handprint!
"[I]n everything give thanks; for this is the will of God in Christ Jesus for you." - 1 Thessalonians 5:18
Lilly in her pumpkin hat last Thanksgiving:
"Would you know who is the greatest saint in the world: It is not he who prays most or fasts most, it is not he who gives most alms or is most eminent for temperance, chastity or justice; but it is he who is always thankful to God, who wills everything that God wills, who receives everything as an instance of God's goodness and has a heart always ready to praise God for it." - Wiilliam Law
Solomon wearing Lilly's pumpkin hat this Thanksgiving:
"If a fellow isn't thankful for what he's got, he isn't likely to be thankful for what he's going to get." - Frank A. Clark
I know this picture portraying the first Thanksgiving is supposed to be historically inaccurate, but I like it anyway:
"O give thanks to the LORD, for He is good; For His lovingkindness is everlasting." - 1 Chronicles 16:34
(Above photo) Lilly's turkey handprints from the two Thanksgivings she was with us. I'm off now to help Solomon make his first turkey handprint!
"[I]n everything give thanks; for this is the will of God in Christ Jesus for you." - 1 Thessalonians 5:18
Sunday, November 18, 2012
Recently my boys and I were driving home one evening and I turned classical station on. We listened in silence for a few minutes and then Hunter asked "What does this song make you think of?" I said "Well, it sounds both beautiful and sad to me. What does it make you think of?" He said "It makes me think of Lilly." It was interesting to find out what the piece was - it was Schumann's "Scenes from Childhood." (You can listen to it on this YouTube clip.)
Ever since that evening, it seems that Hunter has been thinking about Lilly and talking about her more than usual. He has been drawing pictures of Lilly. Here is one he did of "Lilly at her house":
That's Lilly in the bottom left area.
Last month, for Pregnancy Loss and Infant Awareness Month, quite a number of Trisomy angel moms all lit candles at the same time one night, in remembrance of our angels. It was called the "Wave of Light." Jordan's mom recently posted this framed and matted picture of her candles, and the names of angel children written on the mat:
Lilly's name ("Lillian Eva") is at the top. I am grateful for the Trisomy community I am part of online.
I am participating in a special angel rememberance project for Christmas. But I'll have to share more about that later, I just realized that Solomon has leaked in my lap. Babies can be so messy! But so can we - just in different ways . . . .
Ever since that evening, it seems that Hunter has been thinking about Lilly and talking about her more than usual. He has been drawing pictures of Lilly. Here is one he did of "Lilly at her house":
That's Lilly in the bottom left area.
Last month, for Pregnancy Loss and Infant Awareness Month, quite a number of Trisomy angel moms all lit candles at the same time one night, in remembrance of our angels. It was called the "Wave of Light." Jordan's mom recently posted this framed and matted picture of her candles, and the names of angel children written on the mat:
Lilly's name ("Lillian Eva") is at the top. I am grateful for the Trisomy community I am part of online.
I am participating in a special angel rememberance project for Christmas. But I'll have to share more about that later, I just realized that Solomon has leaked in my lap. Babies can be so messy! But so can we - just in different ways . . . .
Thursday, November 15, 2012
2 and 11
Today Solomon turned 2 months old. Today marks the 11th month since Lilly passed away. Our rainbow boy has taken some of the sting out of "The 15th" though of course we still miss our Lilly, and always will.
Solomon has some things in common with his big sister Lilly. Neither of them like/liked to sleep with their arms under the blankets:
Notice in Lilly's picture she also has pulled a "sneaky Lilly!" (sock off)
Solomon has found the couch corner to be a good place to chew on his fingers, just like big sister Lilly did:
I read the other day that "one thing to NEVER say to a grieving parent" is that "their child is in a better place." I imagine that is true for many. But knowing that that brings me more comfort in my missing Lilly than anything else - knowing that she is in a "better place." I know you had another perfect day in heaven, my sweet Lilly girl ....
Sunday, November 11, 2012
Turkeys on the tree
I feel like such a bad mommy - we just decorated Lilly's tree for the month today - a week later than we wanted too. But it is done, though I think we'll need to make a few more turkeys to fill in. (Turkeys are this month's theme.) We had to get new lights again - our last string burned out. Here is the tree:
Each Thanksgiving, I have the children draw a "turkey hand" and we put it in a notebook. I copied the two I had done of Lilly's hand (2010 and 2011) and put them on the tree:
I like how Lilly's hand turkeys show her growth - not only in size, but in how she wasn't clenching her forefinger as much. (Many children with Trisomy 18 keep their hands clenched. It loosens up as they grow, though mom's of older children have told me that when their T-18 child gets sleepy, they often softly clench their hands again.)
Hunter made a big turkey for the tree with cardstock and popsicle sticks:
Tabby made the turkey topper with a tiny flower pot and pipe cleaners:
Each Thanksgiving, I have the children draw a "turkey hand" and we put it in a notebook. I copied the two I had done of Lilly's hand (2010 and 2011) and put them on the tree:
I like how Lilly's hand turkeys show her growth - not only in size, but in how she wasn't clenching her forefinger as much. (Many children with Trisomy 18 keep their hands clenched. It loosens up as they grow, though mom's of older children have told me that when their T-18 child gets sleepy, they often softly clench their hands again.)
Hunter made a big turkey for the tree with cardstock and popsicle sticks:
Tabby made the turkey topper with a tiny flower pot and pipe cleaners:
Friday, November 9, 2012
Let's get back to normal!
What is Solomon smiling about?
His Mommy is FINALLY about done packing! Just some pictures to hang and a couple boxes to sort through and store then it is DONE! Praise God! This has been the longest, most exhausting unpacking experience of my life and I am so ready to get back to "normal." (Hear that Tabby and Hunter? That means regular homeschool lessons again next week!)
"There is a time for everything, and a season for every activity under the heavens: . . ." - Ecclesiastes 3:1
I'm so so so thankful the "season of unpacking" is coming to an end.
Stay tuned for LillyBear's special house tour - she's going to post pictures on the blog with some of Lilly's special areas in our new home. :)
His Mommy is FINALLY about done packing! Just some pictures to hang and a couple boxes to sort through and store then it is DONE! Praise God! This has been the longest, most exhausting unpacking experience of my life and I am so ready to get back to "normal." (Hear that Tabby and Hunter? That means regular homeschool lessons again next week!)
"There is a time for everything, and a season for every activity under the heavens: . . ." - Ecclesiastes 3:1
I'm so so so thankful the "season of unpacking" is coming to an end.
Stay tuned for LillyBear's special house tour - she's going to post pictures on the blog with some of Lilly's special areas in our new home. :)
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